Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photographer, podcaster, the director of social media for Autism Speaks, and the mother of three children, one of whom, 11 year-old Charlie, has an extreme form of autism and another, Jude, who is higher functioning. She also serves on the board of NCSA.

In this webinar and conversation Eileen shares the realities of Jude's profound autism, including persistent pica (ingestion of inedible objects), spitting, property destruction and aggression, her experiences being bullied online by neurodiversity adherents, her own autism diagnosis, and how she finds the time to share her story with the world while dealing with her son's life-threatening behaviors. Moderated by Jill Escher, NCSA. Links: The Autism Cafe: https://theautismcafe.com Adulting on the Spectrum podcast: https://www.autismspeaks.org/podcast/adulting-spectrum-meet-our-hosts Find us at NCSAutism.org

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Episoder(60)

Special: Mothers Day 2026 - Amplifying Mothers

Special: Mothers Day 2026 - Amplifying Mothers

Across seventeen separate kitchens and living rooms, the same patterns surface. Children who cannot describe their own symptoms have aggressive behaviors read as "just autism" instead of as pain, neur...

11 Mai 58min

Autism Wars - After Action Review with Jonathan Machnee

Autism Wars - After Action Review with Jonathan Machnee

Jonathan Machnee did close to a decade inside the neurodiversity movement as a true believer. Then his military intelligence training kicked in. He started analyzing the battlefield, mapping the facti...

21 Apr 1h 50min

Episode #058 - Crisis Care for Severe and Profound Autism

Episode #058 - Crisis Care for Severe and Profound Autism

Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, men...

3 Jun 20241h 18min

Episode #056 - Sounding Off About Autism Month

Episode #056 - Sounding Off About Autism Month

Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...

22 Apr 202459min

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...

22 Apr 20241h 17min

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Featuring: Ashley Kim, Together for Choice Jackie Ceonzo, SNACK* NYC Note: For a video recording with slides, please see NCSAutism.org/webinars. There is a nationwide shortage of long term supports ...

4 Mar 20241h 23min

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with speci...

1 Mar 20241h 22min

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