Episode 13 - Thomas McKean Is an Autism Self-Advocate Who Stands Up for Parents

Episode 13 - Thomas McKean Is an Autism Self-Advocate Who Stands Up for Parents

The internet sees rampant bullying of autism parents but Tom McKean is calling BS. Diagnosed with autism in his teens, Tom, now in his mid-50s, became one of autism’s very earliest self-advocates, along with Temple Grandin and a few others. Grounded in his desire to help those less fortunate than himself, he now writes and blogs about autism and its bizarre culture wars. Highlights:

• His (bitter) experience being institutionalized in his late teens

• His unexpected journey toward becoming an autism advocate

• He has decades of witnessing parents’ sacrifice and love for their children, but some of the newer and more vitriolic advocates are ignorant of the broader world of autism

• Interviewer Jill Escher has been chatting with Tom about guitar for several months, and the two perform an impromptu and fairly ear-offending duet!

Links:

Tom McKean on Facebook here: https://www.facebook.com/thomasamckean

Blogpost about the autism puzzle piece logo: The Autism Puzzle Piece Logo: What It Really Means

Episoder(58)

Episode #058 - Crisis Care for Severe and Profound Autism

Episode #058 - Crisis Care for Severe and Profound Autism

Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, men...

3 Jun 20241h 18min

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photo...

3 Jun 20241h 13min

Episode #056 - Sounding Off About Autism Month

Episode #056 - Sounding Off About Autism Month

Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...

22 Apr 202459min

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...

22 Apr 20241h 17min

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Featuring: Ashley Kim, Together for Choice Jackie Ceonzo, SNACK* NYC Note: For a video recording with slides, please see NCSAutism.org/webinars. There is a nationwide shortage of long term supports ...

4 Mar 20241h 23min

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with speci...

1 Mar 20241h 22min

Episode #052 - National Council on Severe Autism Webinar, February 15, 2024

Episode #052 - National Council on Severe Autism Webinar, February 15, 2024

National Council on Severe Autism Webinar, February 15, 2024, featuring: Jill Escher, Escher Fund for Autism Walter Zahorodny, PhD, Rutgers University This webinar examines the most important and poor...

19 Feb 20241h 41min

Episode #051 - The Reauthorization of the Autism CARES Act

Episode #051 - The Reauthorization of the Autism CARES Act

This episode features Alison Singer, president of Autism Science Foundation, and Craig Snyder of IKON Consulting, discussing why the Autism CARES Act should be reformed before it is re-authorized. Thi...

12 Feb 20241h 18min

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