Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD

Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD

We are very fortunate to host Paul Aronsohn, New Jersey Ombudsman for Individuals with Intellectual or Developmental Disabilities and Their Families. Paul serves a unique role not seen in any other state. The Ombudsman is an independent position working to assist families, a large portion of which are affected by severe autism, and improve systems of care. The position was created by an act of the NJ legislature in 2017 after a strong push by parents and advocates. In conversation with NCSA President Jill Escher they discuss:

—His unique role in the state; his immersion in the field, seeing what families are facing first-hand

—Data about increasing autism prevalence in New Jersey (1 in 35 8 year-olds, and 20,000 estimated severe autism cases)

—His office's Annual Reports which do not mince words about the crises facing families and the state

—The disconnect between those making decisions and the families affected by them

—Issues he hears about from families every day: access to treatment, housing, Direct Support Professional crisis, shortage of residential options

—Efforts to address issues on a systems level, via interagency groups

—Speaking truth to power, on state letterhead

—And much more

Links:

Ombudsman office: https://nj.gov/treasury/njombudsman/

2021 Annual Report: https://nj.gov/treasury/njombudsman/documents/2021-Annual-Report.pdf

Paul's contact info: Disability.Ombudsman@treas.nj.gov

Episoder(58)

Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

We are happy to present a two-part series with Melissa Harris, Deputy Director, Disabled and Elderly Health Programs Group, Centers for Medicare and Medicaid Services (CMS). Her role is to develop and...

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Episode #033 - Bridging the Divide

Episode #033 - Bridging the Divide

After Tom McKean (ep 29) suggested that NCSA invite Morénike Giwa Onaiwu, a prominent neurodiversity advocate, on the podcast, we were thrilled when she agreed to join us for a special episode about t...

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Episode #032 - The Case for Profound Autism, with Dr. Lee Wachtel

Episode #032 - The Case for Profound Autism, with Dr. Lee Wachtel

This is an audio recording of the NCSA March 14, 2023 webinar featuring Dr. Lee Elizabeth Wachtel, one of the world's foremost clinicians serving patients with severe and profound autism. She is Medic...

27 Mar 20231h 16min

Episode #030 - The Film Beyond Takes Viewers into an Unimaginable World of Profound Autism

Episode #030 - The Film Beyond Takes Viewers into an Unimaginable World of Profound Autism

The brilliant new documentary film, "Beyond" features Tamara Mark, a Hollywood actress and dancer, and now single mom living in LA with her two grown sons who suffer from severe autism, Ian and Harry....

9 Mar 202352min

Episode #029 - Just Say No to the Bullying of Autism Parents

Episode #029 - Just Say No to the Bullying of Autism Parents

Pioneering autism advocate Thomas McKean joins us again (he first appeared in Ep 13) to discuss the bizarre online phenomenon of anti-parent bullying by militant autism self-advocates. Like witch hunt...

20 Feb 20231h 4min

Episode #028 - Finding the Fun: Skiing and Sports with Severe Autism

Episode #028 - Finding the Fun: Skiing and Sports with Severe Autism

Outdoor activities bring joy to countless people with autism, all across the spectrum. We are incredibly honored to have two of the nation's top leaders in the field of sports and outdoor recreation f...

13 Feb 202341min

Episode 027 - Thriving with Severe Autism at Bittersweet Farms

Episode 027 - Thriving with Severe Autism at Bittersweet Farms

Bittersweet Farms, established in the mid-1980s in Ohio, is a pioneering model of a farmstead-based residential and day program serving adults with autism complex behavioral needs. In a world where se...

6 Feb 202356min

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