Siblings in the Congenital Heart Defect Community
The CHC Podcast: Congenital Heart Chronicles2 Aug 2024

Siblings in the Congenital Heart Defect Community

Parents of children with congenital heart defects may worry that their afflicted child's siblings will have a rough go of things considering the hospitalizations, doctor's appointments, therapy treatments, and more. They may worry that siblings will resent the extra time they need to spend with their medically fragile children.

This episode features four adults who grew up with a brother or a sister who was born with a congenital heart defect. Tune in to hear what struggles they faced, how their families handled having frequent doctors' appointments, and surgical procedures, and why a tight family unit is so critical for helping children develop compassion, empathy, and a deep love for their siblings.

Featured Guests include: Amy Cowin, Stephen Guerin, Roy Simkhay, and Michelle Steltzer.

Co-Hosts for this episode are: Anna Jaworski and Ayrton Beatty.

Co-Producers for this episode are: Annie Ulchak and Guy Simkhay

Volunteer/Patron: Frank Jaworski

If you enjoyed this episode and would like to support the program, please join our Supporter's Club: https://www.spreaker.com/podcast/the-chc-podcast--5779157/support

If you'd like to be a Patron or join our group of volunteers, check out our website: https://www.heartsunitetheglobe.com

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Episoder(43)

Navigating Emotional Transitions with CHD

Navigating Emotional Transitions with CHD

(00:00:00) Naming the Unspoken (00:00:26) Welcome and Topic Setup (00:01:21) Meet the Panel (00:04:07) Corinne on Life Decades (00:06:55) Insurance and Anxiety Relief (00:09:18) Jen Finds Her Voice (0...

2 Aug 1h 12min

Heart Camps That Change Lives

Heart Camps That Change Lives

(00:00:00) Welcome And Why Heart Camps Matter (00:02:50) Beat Retreat Begins For Adults (00:03:52) Camp Life Plus Anonymous Q&A (00:05:53) Camp Meridian For Kids And Teens (00:09:15) Accessibility And...

30 Jun 53min

After the Shock: From Diagnosis to Direction

After the Shock: From Diagnosis to Direction

(00:00:00) Welcome And Meet The Panel (00:03:12) The First Appointment Shock (00:06:39) Dismissed Symptoms And Second Opinions (00:08:16) Fight Or Flight And Family Pressure (00:12:01) How To Prepare ...

16 Jun 47min

Stroke Awareness: Awareness Today, Stronger Tomorrow

Stroke Awareness: Awareness Today, Stronger Tomorrow

(00:00:00) Introductions And Stroke Risk In CHD (00:03:40) What The First Symptoms Felt Like (00:10:09) Stroke Watch Meds And Follow Up (00:12:21) The Surprising Aftereffects Of Stroke (00:17:27) List...

31 Mai 1h 12min

Easing Anxiety Before the Operating Room

Easing Anxiety Before the Operating Room

(00:00:00) A Lifelong Patient’s Reality (00:01:16) What Triggers Pre-Op Anxiety (00:04:10) Frank’s OR Calm And Clear Words (00:09:05) Hypnotic Rapport And Familiar Voices (00:14:45) Music Therapy Tool...

28 Apr 57min

Tested Love Documentary On Faith And CHD Trauma

Tested Love Documentary On Faith And CHD Trauma

(00:00:00) Welcome! (00:02:06) A Heart Dad Chooses Hope (00:04:14) Demi's Miracle Through Music (00:08:23) Coping with Trauma Through Faith (00:11:48) Why Men's Mental Health Matters (00:15:11) CHD Re...

23 Mar 54min

New Year, New Narratives

New Year, New Narratives

In the first episode of Season 4, Anna Jaworski announces that The CHC Podcast: Congenital Heart Conversations has been reintroduced as Congenital Heart Chronicles after listener voting. This reflects...

1 Mar 36min

Caring Through Complexity: End-of-Life Care

Caring Through Complexity: End-of-Life Care

(00:00:00) Introduction and Episode Overview (00:00:17) Meet the Hosts and Co-Producer (00:01:04) Introducing Today's Guests (00:03:34) Misconceptions About Hospice Care (00:06:14) Psychological Persp...

29 Des 20251h 3min

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