I AM MADELINE29 Nov 2024

I Need A Christmas Miracle🤞🎄

this episode I update you on the ongoing stink fiasco, running out of money, how both are negatively affecting my health and my head and how, as I'm running out of money very quickly, how I'm going to need to go fully public but how do I pull together the energy and time that it will take to prepare and organize that. how do I get comfortable with the idea that that going fully public for me has a very low chance of survival. plus I'm trying to prepare a petition. all with energy I don't have. boy oh boy, do I need a Christmas miracle! but how? where? I keep trying to remind myself that when Liza insisted on setting up the GoFundMe I thought I was going to die. and never thought people would donate to it. i never thought I would stay alive this long. but now that that is not getting triggered by any new articles. no publication will do one and the only way I seem to have any chance that that happening is going fully public, what do I do? GoFundMe link where you'll see the photos I talked about in this episode in the updates. should be to updates ago as of today https://gofund.me/cff39173 and here is the Amazon wish list I spoke of https://www.amazon.ca/hz/wishlist/ls/KF3XJG9AUU95?ref_=wl_share I'm really struggling to not lose hope. I'm trying to focus on next steps. I'm trying not to let the fact that I'm not sure how I navigate through Christmas as I think I may run out of money before Christmas. and that's eating my brain. and Christmas is already hard for me. do you think it will help to write a dear Santa letter? cuz honestly I would try anything right now

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Episoder(158)

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Jul 48min

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Jul 8min

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Jul 5min

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Jul 4min

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Jul 13min

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Jul 12min

the DOCUMENT

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Jun 32min