Episode 53: iConquer MS with Dr. Robert McBurney & David Gwynne
RealTalk MS18 Sep 2018

Episode 53: iConquer MS with Dr. Robert McBurney & David Gwynne

I spent this past weekend attending the iConquer MS Leadership Summit in Boston. iConquer MS is a people-powered research network created by the Accelerated Cure Project for MS. Instead of just asking people with MS to provide data, iConquer MS is driven by people living with MS, and it represents a new paradigm of building collaborative partnerships to solve big healthcare questions.

This past spring, I had an in-depth conversation with Dr. Robert McBurney, CEO of the Accelerated Cure Project for MS, and David Gwynne, who heads up their Alliances & Collaborations. We'll revisit that conversation, and I'll also give you my thoughts on the remarkable iConquer MS Leadership Summit.

We're also talking about the shocking decision in the UK to withhold Ocrevus as a treatment for Primary Progressive MS, the MS In America 2017 survey results, and I'll tell you about a couple of excellent webinars that you should be sure to check out.

We have a lot to talk about! Are you ready for RealTalk MS?

___________

NICE Rejects Ocrevus for PPMS in the UK 1:06

MS In America Survey Results Provide Surprising Insights 4:20

Upcoming Webinars from Can-Do MS 7:40

iConquer MS Leadership Summit 9:49

Interview with Dr. Robert McBurney & David Gwynne 13:09

___________

LINKS
If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

Petition to Make Ocrevus Available for People with PPMS in the UK

Relapse Prevalence, Symptoms, and Health Care Engagement: Patient Insights from the Multiple Sclerosis in America 2017 Survey

Can-Do MS Webinar Series

iConquer MS

Accelerated Cure Project for MS

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 53
Hosted By: Jon Strum
Guests: Dr. Robert McBurney & David Gwynne

Tags: MS, MultipleSclerosis, Ocrevus, iConquerMS, CanDoMS, RealTalkMS

Episoder(505)

Episode 443: The 2026 ACTRIMS Forum (Part 3) with Dr. Helen Tremlett, Dr. Ilana Katz Sand, and Kathy Smith

Episode 443: The 2026 ACTRIMS Forum (Part 3) with Dr. Helen Tremlett, Dr. Ilana Katz Sand, and Kathy Smith

Welcome back to the third and final part of our coverage of the 2026 ACTRIMS Forum. This week's episode bridges the gap between groundbreaking clinical research and the nuanced reality of living with ...

23 Feb 35min

Episode 442: The 2026 ACTRIMS Forum (Part 2) with Dr. Jeffrey Cohen, Dr. Daniel Ontaneda, and Kristine Werner Ozug

Episode 442: The 2026 ACTRIMS Forum (Part 2) with Dr. Jeffrey Cohen, Dr. Daniel Ontaneda, and Kristine Werner Ozug

Welcome back to Part Two of our coverage of the 2026 ACTRIMS Forum. This week, we shift our focus to emerging therapies and clinical insights that are re-shaping the future of MS care. From the latest...

16 Feb 44min

Episode 441: The 2026 ACTRIMS Forum with Dr. Manuel Friese, Dr. Amit Bar-Or, and Dr. Haritha Desu

Episode 441: The 2026 ACTRIMS Forum with Dr. Manuel Friese, Dr. Amit Bar-Or, and Dr. Haritha Desu

Last week, over 1,400 scientists and clinicians gathered in San Diego, California, at the 2026 Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the A...

9 Feb 33min

Episode 440: An MS Specialist's Response to the FDA with Dr. William Conte

Episode 440: An MS Specialist's Response to the FDA with Dr. William Conte

This past December, the FDA issued a Complete Response Letter to drug manufacturer Sanofi in response to Sanofi's application seeking approval for Tolebrutinib, the first in a new category of investig...

2 Feb 39min

Episode 439: Preventing MS with Dr. Bruce Bebo

Episode 439: Preventing MS with Dr. Bruce Bebo

The first coordinated global research strategy to prevent MS has been announced. This week, Dr. Bruce Bebo, the National MS Society's Executive Vice President and Chief Research & Medical Affairs Offi...

26 Jan 32min

Episode 438: The Discovery of 2 MS Subtypes with Dr. Arman Eshaghi

Episode 438: The Discovery of 2 MS Subtypes with Dr. Arman Eshaghi

One of the more confusing aspects of MS is that it can present differently from one person to the next. A research team at University College London may have uncovered a reason for that when they iden...

19 Jan 29min

Episode 437: Remembering David Mitchell

Episode 437: Remembering David Mitchell

I don't have to remind anyone who listens to this podcast that the cost of MS disease-modifying therapies is obscenely high. And we're not just talking about relatively new medications. Older medicati...

12 Jan 29min

Episode 436: 3 Questions Your Neurologist Should Be Asking Themselves with Dr. Leorah Freeman

Episode 436: 3 Questions Your Neurologist Should Be Asking Themselves with Dr. Leorah Freeman

Scientists are expanding our understanding of MS at an unprecedented pace. This week, Dr. Leorah Freeman discusses why, as new discoveries and medications enter clinical practice, neurologists and MS ...

5 Jan 34min

Populært innen Helse

fastlegen
lydartikler-fra-aftenposten
hvordan-har-du-det-mann
rss-gukild-johaug
psykodrama
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
leger-om-livet
rss-garne-damer
foreldreradet
hjernesterk
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
hormonelle-frida
g-punktet
morten-ramm-lar-kakla-ga-til-du-sovner
klimaks
rss-lopedrommen
helsetipspodden
rss-kull
sinnsyn
biohacking-girls-din-podcast-for-optimal-helse