1.10 Year in Review 2022 - Zebra Edition

1.10 Year in Review 2022 - Zebra Edition

NOTE: Hacking Hypermobility UNMASKED - We opted to leave all of our stumbling, umms, and off-topic squirrelling in this episode. As a result, the episode is 3 hours long! This episode is also the season one finale. The Bendy Mommas are going to enjoy a hiatus for a little bit before we buckle down and solidify plans for season two. Keep up with us on our socials in the mean time!

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The Bendy Mommas close out the season with a recap of the Zebra news from 2022. Luna and Shelli’s 2022 wrap-up has all the news you missed pertinent to Hypermobility and Neurodivergence including all the new medical research in the inherited connective tissue disorders including the Ehlers-Danlos Syndromes, Joint Hypermobility Syndrome, Autism, ADHD, genetics, CRISPR gene editing, therapeutics, treatments, community and even some celebrity news.

We appreciate YOU, our listeners so very much. Thank you for a successful first season!

If you have any questions or comments for future episodes please send us a message (voice, audio, or video) at info@hackinghypermobility.com. Be sure to give us permission to use your likeness and if you want us to use your name or not.

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You may find all the resources on our website under the blog:

https://www.hackinghypermobility.com/post/2022-year-in-review-of-zebra-news

Episoder(43)

2.16 Why Get Diagnosed? - Part Two

2.16 Why Get Diagnosed? - Part Two

On this week's episode, the Two Bendy Mommas continue to discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagno...

18 Jul 202444min

2.15 Why Get Diagnosed?

2.15 Why Get Diagnosed?

On this week's episode, the Two Bendy Mommas discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey...

11 Jul 20241h 18min

2.14 - Hypermobile Dudes Part 3: The Conclusion

2.14 - Hypermobile Dudes Part 3: The Conclusion

This week, Luna, Shelli, and our special guest panel members Brandon Buccieri (@susanpossibly), Doug Kremer (@DougKrem) and Bryan Jewell (@kindaspoony) wrap up their discussion on how Hypermobile Ehle...

27 Jun 202446min

2.13 - Patient Advocacy & Insurance

2.13 - Patient Advocacy & Insurance

We're back this week with the final segment of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, e...

13 Jun 202426min

2.12 - Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS

2.12 - Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS

The Bendy Mommas continue to look into understanding the intersectionality of Hypermobility by talking to some Bendy Dudes. We gathered a panel of men with Hypermobile Ehlers-Danlos Syndrome (hEDS) to...

30 Mai 202443min

2.11 - The Conversation With a Patient Advocate, Part 3

2.11 - The Conversation With a Patient Advocate, Part 3

Two episodes in one day? Why not? We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so ...

23 Mai 202437min

2.10 - Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS

2.10 - Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS

On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects an often underrepresented community within our Zebra Herd: Men. In our first-ever panel interview, we tal...

23 Mai 202454min

2.9 - The Conversation With a Patient Advocate Continues

2.9 - The Conversation With a Patient Advocate Continues

We're back this week with Part 2 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "...

16 Mai 202435min

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