2.2 Year in Review 2023 - Hypermobility Edition

2.2 Year in Review 2023 - Hypermobility Edition

The Bendy Mommas continue the second season with a review of Zebra news from 2023. Luna and Shelli’s wrap-up has all the news you missed pertinent to Hypermobility and the Ehlers-Danlos Syndromes.

If you have any questions, comments, or suggestions for future episode topics, please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com or info@hackinghypermobility.com

Be sure to give us permission to use your likeness and if you want us to use your name, photo, or voice.

References

Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes - ScienceDirect

Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term - ScienceDirect

Full article: Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience

Research article Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis

A novel mutation in collagen transport protein, MIA3 gene, detected in a patient with clinical symptoms of Ehlers–Danlos hypermobile syndrome

Ehlers-Danlos Syndrome is Associated with Increased Rates of Adjacent Segment Disease Following TLIF: A Propensity Matched Study - ScienceDirect

Sacroiliac joint fusion in patients with Ehlers Danlos Syndrome: A case series - ScienceDirect

Outcomes Following Anterior Cervical Discectomy and Fusion in Patients With Ehlers-Danlos Syndrome - Jialun Chi, Jon Raso, Vaibhav Tadepalli, Lawal Labaran, Eunha Oh, Jesse Wang, Francis H. Shen, Xudong Li, 2023

Mike and Sofia Segal Family Foundation pledge $6.7 million to advance research - The Ehlers Danlos Society

$2.375 million pledge from InVitro Cell Research, LLC (ICR) for research in hypermobile Ehlers-Danlos syndrome (hEDS)

EDS Maternity Co-created Tools | hEDS Together

2023 Diagnostic Framework for Pediatric Joint Hypermobility - The Ehlers Danlos Society

Episoder(43)

3.14 A Conversation With Dr. Akilah Cadet

3.14 A Conversation With Dr. Akilah Cadet

Notes are coming!

1 Aug 202559min

3.13 July is Disability Pride Month

3.13 July is Disability Pride Month

SummaryIt's our Third Birthday! Yay! Celebrate by taking a quick look back at some unseen footage from July 2022.Later in the episode, Luna and Shelli continue their conversation with Dr. Tina Wang. K...

26 Jul 202539min

3.12 A Conversation With Fascia Researcher Dr. Tina Wang

3.12 A Conversation With Fascia Researcher Dr. Tina Wang

SummaryIn this episode, Luna and Shelli interview Dr. Tina Wang, a leading expert in fascia and hypermobility disorders. They discuss the importance of fascia in the body, its role in conditions like ...

19 Jul 20251h 21min

3.11 A Conversation With Movement Therapist Jeannie Di Bon

3.11 A Conversation With Movement Therapist Jeannie Di Bon

Keywordshypermobility, EDS, Integral Movement Method, Zebra Club, chronic pain, movement therapy, nervous system regulation, healthcare education, community support, patient advocacySummaryIn this epi...

5 Jul 20251h 16min

3.10 Help I'm Alive: I is for Intersectionality

3.10 Help I'm Alive: I is for Intersectionality

Shelli explores the personal experiences of multiple surgeries, focusing on the scheduling, preparation, recovery, and interactions with healthcare professionals.Shelli also shares insights into the c...

21 Jun 202534min

3.9 Help, I'm alive: H is for Hand Surgery

3.9 Help, I'm alive: H is for Hand Surgery

In this episode, Tiffany warns about having surgery on both hands on the same day.

7 Jun 202527min

3.8 Help, I'm Alive: G is for Good Vibrations

3.8 Help, I'm Alive: G is for Good Vibrations

Does anyone actually read these descriptions? If you're reading this, not on podcast staff, and have the spoons, leave us a review or comment and tell us about this silly episode description!

24 Mai 202540min

3.7 Help, I'm Alive: F is for Fuuuuuuuu

3.7 Help, I'm Alive: F is for Fuuuuuuuu

Oopsie!Shelli's YouTube

26 Apr 202538min

Populært innen Helse

fastlegen
hvordan-har-du-det-mann
lydartikler-fra-aftenposten
rss-gukild-johaug
psykodrama
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
leger-om-livet
morten-ramm-lar-kakla-ga-til-du-sovner
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
foreldreradet
rss-garne-damer
helsetipspodden
rss-sunn-okonomi
rss-lopedrommen
g-punktet
hverdagspsyken
hjernesterk
klimaks
hormonelle-frida
biohacking-girls-din-podcast-for-optimal-helse