2.2 Year in Review 2023 - Hypermobility Edition

2.2 Year in Review 2023 - Hypermobility Edition

The Bendy Mommas continue the second season with a review of Zebra news from 2023. Luna and Shelli’s wrap-up has all the news you missed pertinent to Hypermobility and the Ehlers-Danlos Syndromes.

If you have any questions, comments, or suggestions for future episode topics, please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com or info@hackinghypermobility.com

Be sure to give us permission to use your likeness and if you want us to use your name, photo, or voice.

References

Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes - ScienceDirect

Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term - ScienceDirect

Full article: Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience

Research article Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis

A novel mutation in collagen transport protein, MIA3 gene, detected in a patient with clinical symptoms of Ehlers–Danlos hypermobile syndrome

Ehlers-Danlos Syndrome is Associated with Increased Rates of Adjacent Segment Disease Following TLIF: A Propensity Matched Study - ScienceDirect

Sacroiliac joint fusion in patients with Ehlers Danlos Syndrome: A case series - ScienceDirect

Outcomes Following Anterior Cervical Discectomy and Fusion in Patients With Ehlers-Danlos Syndrome - Jialun Chi, Jon Raso, Vaibhav Tadepalli, Lawal Labaran, Eunha Oh, Jesse Wang, Francis H. Shen, Xudong Li, 2023

Mike and Sofia Segal Family Foundation pledge $6.7 million to advance research - The Ehlers Danlos Society

$2.375 million pledge from InVitro Cell Research, LLC (ICR) for research in hypermobile Ehlers-Danlos syndrome (hEDS)

EDS Maternity Co-created Tools | hEDS Together

2023 Diagnostic Framework for Pediatric Joint Hypermobility - The Ehlers Danlos Society

Episoder(43)

3.6 Help I'm Alive: Dysfunction Junction

3.6 Help I'm Alive: Dysfunction Junction

Keywordsbrain, dysautonomia, executive functioning, personal journey, daily challenges

12 Apr 202511min

3.5 Help, I'm Alive: D is for Dysplasia

3.5 Help, I'm Alive: D is for Dysplasia

If you are able, Shelli recommends watching this episodeSummaryIn this episode, Luna discusses a groundbreaking study linking joint hypermobility and anxiety, highlighting the neurological underpinnin...

29 Mar 202539min

3.4 Help, I'm Alive: C is for Complicated

3.4 Help, I'm Alive: C is for Complicated

C is for ComplicatedIn this episode, Shelli shares candid, unscripted video diaries that cover the time period leading up to and one week following hip surgery in September 2024.Content Warning - at a...

15 Mar 202550min

3.3 Help, I'm Alive: Bottoms Up

3.3 Help, I'm Alive: Bottoms Up

B is for Bottoms Up!In this episode, Shelli discusses psychological concepts like bottom-up and top-down processing and reflects on family dynamics and support during her recovery. The conversation al...

1 Mar 202519min

3.2 Help, I'm Alive: Alexa Tamia

3.2 Help, I'm Alive: Alexa Tamia

SummaryIn this season, Shelli shares her experiences following orthopedic surgeries, focusing on recovery, emotional well-being, and the challenges faced by those with neurodivergence. Today's convers...

15 Feb 202530min

3.1 The Two Bendy Momma's Third Annual Zebra Year in Review

3.1 The Two Bendy Momma's Third Annual Zebra Year in Review

Happy International Zebra Day from the Hacking Hypermobility Podcast! On this episode, we launch Season 3 with a retrospective of 2024 highlighting topics pertinent to the Ehlers-Danlos Syndromes and ...

1 Feb 202547min

A Mysterious New Year

A Mysterious New Year

Surprise! The Bendy Mommas have a little treat for you to welcome 2025. Good riddance, 2024! New episodes resume on International Zebra Day, January 31

1 Jan 202512min

2.17 Pediatric Hypermobility

2.17 Pediatric Hypermobility

Welcome back to Hacking Hypermobility! This week's episode is all about pediatric hypermobility. Shelli and Luna are diving into how hypermobility impacts children and teenagers, the pediatric diagno...

1 Aug 202438min

Populært innen Helse

fastlegen
hvordan-har-du-det-mann
lydartikler-fra-aftenposten
rss-gukild-johaug
psykodrama
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
leger-om-livet
morten-ramm-lar-kakla-ga-til-du-sovner
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
foreldreradet
rss-sunn-okonomi
klimaks
rss-garne-damer
helsetipspodden
rss-lopedrommen
hverdagspsyken
g-punktet
biohacking-girls-din-podcast-for-optimal-helse
hormonelle-frida
sinnsyn