Ep 12 Young Carers Take Over with Peter Dine

Ep 12 Young Carers Take Over with Peter Dine

This week, on the Reverse Rett Podcast, 18-year-old A Level student, Peter Dine who is brother to not one, but two young women with Rett Syndrome, speaks to fellow Rett siblings from Washington State to the East Coast of Scotland in celebration of Young Carer's Action Day 2021.

From the moment they first realised their sibling was different, to the additional anxieties of Covid; from the rage of social inequality to being the one calling 999 and guiding the ambulance home, this is an enlightening episode for special needs parents everywhere.

Huge thanks to Peter, Riley, Angus, Naomi, Finlay for sharing their stories so openly. Big respect to them and all the Young Carers out there whose lives have been inextricably altered by this experience. We hear you and it matters.

Reverse Rett

#MakingChangeHappen for children and adults with #RettSyndrome

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Episoder(27)

Ep 27 Mark "Mavis" Reilly

Ep 27 Mark "Mavis" Reilly

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Ep 26 Ross McKinney and Duncan Hughes

Ep 26 Ross McKinney and Duncan Hughes

The whole Rett Syndrome community were enthralled as the Five in a Row team set off from the Canary Islands last December in the Talisker Whisky Challenge.   Rowing the Atlantic is on the bucket list ...

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Ep 25 Gareth Warne - Pink Elephant Challenge 3

Ep 25 Gareth Warne - Pink Elephant Challenge 3

It's been a while but the Reverse Rett podcast is back! It was a pleasure to speak to the Pink Elephant man himself earlier this week as he approaches his latest crazy challenge for Reverse Rett. Spon...

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Ep 24 - Mathilde Mastroianni

Ep 24 - Mathilde Mastroianni

The Reverse Rett podcast is back and in this episode, I'm speaking with Mathilde Mastroianni, Assistant Psychologist at the CIPP Rett Centre, South London and Maudsley NHS Foundation Trust and King's ...

1 Okt 202149min

Ep 23 Victoria Scott

Ep 23 Victoria Scott

If you were offered a chance to cure your child's disease, would you take it? Not a question we have to think very hard about at Reverse Rett, but this is the fundamental question that underpins Victo...

5 Aug 202151min

Ep 22 Cameron Ross

Ep 22 Cameron Ross

In this episode of the podcast, I sit down with Cam Ross, older brother to Frankie, and son of Reverse Rett co-founder and Trustee, Rita Ross. We'd never had a conversation before recording this episo...

24 Jul 202140min

Ep 21 Helen Simmonds

Ep 21 Helen Simmonds

In today's podcast episode, I'm speaking to Helen Simmonds, Vice Chair of Reverse Rett and mother to Lauren who is 14 and her younger brother William. I met Helen all the way back in 2011 when Lauren ...

16 Jul 202152min

Ep 20 David Wainwright

Ep 20 David Wainwright

This week our guest is one of the busiest dads on the planet, my friend, David Wainwright. David lives in Loughborough with wife, Louise and their three children. His eldest, Georgia has Rett Syndrome...

2 Jul 202148min

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