The Reverse Rett Podcast14 Mai 2021

Ep 18 Sara Meredith

Today my guest on the Reverse Rett Podcast is Sara Meredith, mum of five, writer, storyteller, blogger, and all round hard-loving human.

Sara's third daughter Livvy, was diagnosed with Rett Syndrome after a familiar ongoing struggle to convince professionals that something was wrong. Sara spent the next several years, doing everything she could to give Livvy and her other three daughters, as equal a life as possible, with a positivity which shines through 'Living Like Livvy,' Livvy's story, which was published in 2018 by Andre Govier with all proceeds to benefit Reverse Rett.

Throughout this conversation, Sara and I laugh and cry; there are moments so saturated with emotion that neither of us can speak.

We talk about what it was like for Sara, as a writer, to have someone else write her most important story. We talk about Livvy's devastating sudden death and the gentleman pathologist who helped the family find answers. And we talk about the family's decision to later foster and ultimately adopt Daniel, a gorgeous six year old boy who also has complex disabilities.

This episode may be raw, and stricken with grief but it's wholeheartedly drenched in love and joy and yes, the permission to feel.

To buy Sara's book "Living Like Livvy, Livvy's story" from Amazon/Kindle - https://tinyurl.com/wsjmbj6c

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(27)

Ep 27 Mark "Mavis" Reilly

In this episode Mark "Mavis" Reilly. Mark is a former professional footballer; he shares his story and experiences taking on some of the most gruelling physical challenges to raise awareness for Rett ...

13 Jul 202349min

Ep 26 Ross McKinney and Duncan Hughes

The whole Rett Syndrome community were enthralled as the Five in a Row team set off from the Canary Islands last December in the Talisker Whisky Challenge. Rowing the Atlantic is on the bucket list ...

25 Jul 202240min

Ep 25 Gareth Warne - Pink Elephant Challenge 3

It's been a while but the Reverse Rett podcast is back! It was a pleasure to speak to the Pink Elephant man himself earlier this week as he approaches his latest crazy challenge for Reverse Rett. Spon...

22 Jun 202232min

Ep 24 - Mathilde Mastroianni

The Reverse Rett podcast is back and in this episode, I'm speaking with Mathilde Mastroianni, Assistant Psychologist at the CIPP Rett Centre, South London and Maudsley NHS Foundation Trust and King's ...

1 Okt 202149min

Ep 23 Victoria Scott

If you were offered a chance to cure your child's disease, would you take it? Not a question we have to think very hard about at Reverse Rett, but this is the fundamental question that underpins Victo...

5 Aug 202151min

Ep 22 Cameron Ross

In this episode of the podcast, I sit down with Cam Ross, older brother to Frankie, and son of Reverse Rett co-founder and Trustee, Rita Ross. We'd never had a conversation before recording this episo...

24 Jul 202140min

Ep 21 Helen Simmonds

In today's podcast episode, I'm speaking to Helen Simmonds, Vice Chair of Reverse Rett and mother to Lauren who is 14 and her younger brother William. I met Helen all the way back in 2011 when Lauren ...

16 Jul 202152min

Ep 20 David Wainwright

This week our guest is one of the busiest dads on the planet, my friend, David Wainwright. David lives in Loughborough with wife, Louise and their three children. His eldest, Georgia has Rett Syndrome...

2 Jul 202148min