Fragile X Awareness Month & A Suprise Announcement!

Fragile X Awareness Month & A Suprise Announcement!

Fragile X Syndrome is the leading genetic cause of Autism. It's caused by a mutation of the FMR1 gene responsible for cognitive and behavioral development. Fragile X is often passed on unknowingly. The month of July is Fragile X Awareness Month! An opportunity to continue to spread more awareness of Fragile X, and celebrate the organizations like FRAXA Research Foundation and The National Fragile X Foundation and their efforts to support and find effective treatments for individuals living with Fragile X. It's also an important opportunity to spread awareness of Fragile X to those who may not have otherwise heard of it. In this week's episode, I talk about the importance of awareness month, as well as an EXCITING special announcement! Tune in to find out more!

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Episoder(72)

Small Steps, Big Impact!

Small Steps, Big Impact!

It’s the first episode of A Mama’s Xtra Love Podcast! Woohoo! Tune in to hear about the power of early intervention and how it’s impacted our son’s life tremendously.

19 Aug 202524min

Q&A Part 1: Fragile X Treatments, Anxiety and more!

Q&A Part 1: Fragile X Treatments, Anxiety and more!

Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!

8 Mai 202516min

Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including ...

23 Mar 202521min

The Raw Realities of Grief & More!

The Raw Realities of Grief & More!

Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!

14 Mar 202519min

A Fragile X Family’s Diagnosis Journey

A Fragile X Family’s Diagnosis Journey

It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!

25 Nov 202434min

An Update on our Fragile X Journey!

An Update on our Fragile X Journey!

During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!

5 Jul 202421min

An Important Message from Talk Fragile X

An Important Message from Talk Fragile X

It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!

1 Jul 202421min

Talk Fragile X is Back with News!

Talk Fragile X is Back with News!

It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!

31 Mai 202416min

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