A Cure For Kyler - Pediatric Stroke Patient Story

A large majority of stroke awareness, stories and advocacy is centered around older or aging populations. When we think about stroke, we envision an adult or a person with high risk factors, adult risk factors, such as smoking, drinking, high blood pressure, etc…. Though more common in adults, stroke is among the top 10 causes of death in pediatric patients.

Kyler’s family have become advocates for pediatric stroke awareness. Telling and retelling their story through AVM Alliance, a Cure for Kyler and Friends, an organization they started to raise funds for AVM Foundation and the AVM Research Foundation in an effort to better the lives , support networks, and medical care of those affected by aneurysms and other types of vascular malformations of the brain.

I spoke with Kyler’s mom, Raylene, about a year ago to learn about Kyler’s story and her presence, fierceness, and no-quit attitude has stuck with me ever since then. She is not only fighting for her own son, but so many more children , families, and caregivers living with the fallout of pediatric stroke. And she’s built quite an amazing community around it all.

Learn more about Kyler and his journey, the AVM Alliance, A Cure for Kyler and Friends, visit https://www.facebook.com/AVMAlliance go to cureforkyler.com, avmalliance.com or search the hashtag #ACureForKyler

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The Institute for Stroke and Cerebrovascular Disease (UTHealth Stroke Institute) http://www.utstrokeinstitute.com/

Host: Amy Quinn, Communications Director for the Stroke Institute

Guest: Kyler and Raylene Lewis

Twitter: @UTHealthStroke

Instagram: @UTHealthStroke

Facebook: facebook.com/uthealthstroke

Ideas and opinions are our own and this podcast is not a substitute for expert medical advice.

About

StrokeBusters is a podcast series of recorded conversations on the topic of stroke and cerebrovascular disease. Based in the Texas Medical Center, the largest medical center in the world, we tap into our local network of astonishing leaders in healthcare and medicine to discuss the latest and most exciting news on stroke. Throughout this ten-episode series, we connect with UTHealth physicians and researchers, many of who are experts in their field, to discuss their practice, cutting-edge research, and medical care.

Who We Are

The Institute for Stroke and Cerebrovascular Disease, better known as the Stroke Institute, serves as a multi-disciplinary hub for research and best practices in stroke recovery, stroke prevention, services, population health, and vascular dementia. We are one of the most active research and clinical programs in the country, the first Comprehensive Stroke Center in the state, and launched the first Mobile Stroke Unit in the nation.

Our stroke program, founded by Dr. James Grotta in 1979, specializes in stroke epidemiology, clinical trial design, and basic science. We train the next generation of revolutionary academics and leaders in cerebrovascular disease through our NINDS-funded fellowship programs.

Contact

For more information or if you have any questions, please contact us at info.uthiscd@gmail.com