Another Fragile X Diagnosis Story with The Knudson Five family!
On this weeks episode of Talk FX, I’m joined with Sara Knudson, a passionate mom of three children, with two of the three being affected by Fragile X Syndrome. Sara shares about her children’s diagnos...
23 Mar 202241min
Prioritizing Self-Care in Your Life
Prioritizing self-care is not always simple! Whether you're a mom of a fragile x child, self-advocate, or full-mutation carrier, it can be challenging to find time for yourself to be alone or do what ...
14 Mar 202222min
Advocacy Day 2022 is here!!
On Tuesday, March 1st the National Fragile X Foundation will be having their annual Advocacy Day virtually! This is an opportunity for families affected by Fragile X Syndrome, caregivers, self-advocat...
22 Feb 202222min
Preparing your Fragile X child for Employment
If you're reading the title of this episode and you're thinking "this doesn't pertain to us yet, think again!" In this week's episode of Talk FX, we discuss what it looks like to prepare our children ...
9 Feb 202244min
A raw conversation with family about Fragile X Syndrome
On this weeks episode of Talk FX, it was so special to welcome my Aunt Michelle and Uncle Jeff, and my cousin Nathan for a raw family conversation about Fragile X Syndrome. We discussed the education ...
24 Jan 202247min
How FRAXA Research Foundation is keeping hope alive for a cure for Fragile X!
Joining us for our second episode of 2022 is President & Co Founder of FRAXA Research Foundation; Katie Clapp! She shares with us the exciting research proposals coming up for FRAXA to support, the 2n...
18 Jan 202250min
My Fragile X Diagnosis Story with Special Guest: My Husband Moe Smith!
What better way to start off the new year then kicking off Season 5 of Talk FX with a very personal episode! I'm excited to have my husband Moe on with me for the first time ever! We talk about my dia...
10 Jan 202246min
Preparing for Doctors Appointments
Cheers to our very last episode of 2021!! I've had many conversations with Fragile X families in the last few months regarding a topic that is so important. I've also seen so many families reaching ou...
21 Des 202121min
