#118: Aging and SMA
In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Rock’s experimental therapy, Apitegromab, and go ove...
22 Nov 202252min
#116: Shaniqua Granby, Law Professional With SMA
In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, and she has SMA Type 3. She discusses going to law...
18 Okt 202237min
#115: Jose Flores, Author and Motivational Speaker
In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with SMA Type 3. He discusses his journey toward entrepr...
4 Okt 202250min
#114: Daniele Johnson, SMA Mom and Advocate
In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband’s youngest son, Anthony, has SMA type 0. She talks about her son’s diagnosis, pursuing ...
20 Sep 202230min
#113: Dustin Swafford, Power Soccer Coach and Player
In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and his team recently won the national championship. He...
6 Sep 202235min
#112: Lexi Villa, Social Media Influencer and Disability Advocate
In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media. She discusses moving away from home at a young a...
16 Aug 202256min
#111: Steven Verdile, Graphic Designer and Disabled Creative
In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media creator from New York City. Steven is also the founder and editor-in-chief of The Squeaky Wheel, an online d...
2 Aug 202228min
#110: Author Ben Mattlin Discusses Disability Pride Month
In episode 110, host Kevin Schaefer welcomes back to the podcast Ben Mattlin, an author and disability rights advocate. His upcoming book is called “Disability Pride: Dispatches from a Post-ADA World,...
19 Jul 202231min
