Voices of Resilience: Women Leaders in the Rare Disease Community

Voices of Resilience: Women Leaders in the Rare Disease Community

Today, approximately 10,000 rare diseases collectively affect as many as 400 million people around the world, and women leaders have long been at the forefront of bringing awareness to these diseases and driving change. Katie Couric moderates a panel that includes Tania Simoncelli of Chan Zuckerberg Initiative, whose “Rare as One” campaign gives to rare disease researchers and support groups, Tara Zier who founded the Stiff Person Syndrome Research Foundation, Susan Dando of the Smith-Kingsmore Syndrome Foundation, and Dr. Christina Miyake, a researcher studying TANGO2 deficiency disorder. This panel will explore the resilience, determination, and ingenuity required to address the unique challenges in rare disease advocacy and research. Panelists will share their experiences in breaking barriers, leading patient-centered initiatives, and building collaborations that move the needle toward treatments and cures. #SponsoredbyCZI

See omnystudio.com/listener for privacy information.

Episoder(402)

Katie’s One-on-One with Senator Lisa Murkowski

Katie’s One-on-One with Senator Lisa Murkowski

Katie heads to Capitol Hill for an in-person conversation with Senator Lisa Murkowski of Alaska. In this unflinching interview, Murkowski reflects on her high-stakes political journey, her defiance of...

24 Jun 20251h 32min

Katie’s One-on-One with Rep. Jasmine Crockett

Katie’s One-on-One with Rep. Jasmine Crockett

Texas Rep. Jasmine Crockett is having a moment. The rising Democratic star sits down with Katie for a candid, no-holds-barred conversation about what drives her, what frustrates her, and why she refus...

19 Jun 20251h 10min

The DOJ Under Siege: Former U.S. Attorney General Eric Holder Sounds the Alarm

The DOJ Under Siege: Former U.S. Attorney General Eric Holder Sounds the Alarm

Eric Holder, AG under Obama from 2009 - 2015, has spent most of his life inside the Department of Justice. Now, he’s watching it unravel. He joins Katie to explain how the Trump administration is holl...

12 Jun 202554min

Resisting, Elevating, and Humanizing with Laverne Cox

Resisting, Elevating, and Humanizing with Laverne Cox

More than a decade ago, Katie asked a question she now regrets—one that sparked a meeting with her guest today, Laverne Cox. In this deeply personal conversation, the two revisit that moment and the f...

9 Jun 20251h 12min

Former New Zealand Prime Minister Jacinda Ardern on Crisis, Kindness, and Change

Former New Zealand Prime Minister Jacinda Ardern on Crisis, Kindness, and Change

In a world that rewards power grabs, Jacinda Ardern chose a different path. The former prime minister of New Zealand, who led her country through the Christchurch massacre and COVID, talks with Katie ...

5 Jun 20251h

The Gen Z News Star Taking On Trump 

The Gen Z News Star Taking On Trump 

Aaron Parnas grew up in a Fox News household and once campaigned for Trump. But today, he is a rising progressive voice with millions of followers—and no patience for the media status quo. In this con...

29 Mai 20251h 2min

Biden's Inner Circle and the Cost of Denial

Biden's Inner Circle and the Cost of Denial

Katie traveled to Washington, D.C. to sit down with Jake Tapper and Alex Thompson for a candid conversation about their book Original Sin—an investigation into how President Biden’s decline was hidden...

20 Mai 20251h 33min

The MeidasTouch Network vs. the Right-Wing Media Machine

The MeidasTouch Network vs. the Right-Wing Media Machine

They weren’t political operatives—they were a civil rights lawyer, a digital editor, and a marketing guy. But in the chaos of the Trump era, the Meiselas Brothers felt compelled to act. In their first...

15 Mai 20251h 45min

Populært innen Politikk og nyheter

giver-og-gjengen-vg
aftenpodden
forklart
aftenpodden-usa
popradet
stopp-verden
lydartikler-fra-aftenposten
det-store-bildet
rss-gukild-johaug
dine-penger-pengeradet
nokon-ma-ga
fotballpodden-2
hanna-de-heldige
aftenbla-bla
rss-ness
rss-espen-lee-usensurert
rss-penger-polser-og-politikk
rss-dannet-uten-piano
frokostshowet-pa-p5
rss-utenrikskomiteen-med-bogen-og-grasvik