E5 - Is Your Genetic Information Just Yours?
Genetic Sounds3 Jun 2022

E5 - Is Your Genetic Information Just Yours?

In this episode, we debate “Is your genetic information just yours?”. We discuss where you find your genetic information if you need it, and who should have access to this. A conversation with Lawyer and bioethicist, Betina Cuñado, Associate Professor at the IHMPE in Toronto, Dr Yvonne Bombard, who specialises in the assessment and translation of genomic technologies in clinical care, and Dr Jantina de Vries, Associate Professor in Bioethics at the Department of Medicine of the Un...

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Episoder(18)

E4 - Intellectual Disability and Consent in Human Genetics

E4 - Intellectual Disability and Consent in Human Genetics

In this episode, we discuss intellectual disability and consent in human genetics. In this conversation, we are joined by two guests from The University of New South Wales in Sydney, Dr Elizabeth E...

28 Apr 202341min

E3 - What is a Centre for Rare Conditions?

E3 - What is a Centre for Rare Conditions?

In this episode, we discuss “What exactly is a centre for rare conditions?” A conversation with Professor Siddharth Banka from the University of Manchester, Professor Gareth Baynam from Australian N...

3 Mar 202340min

E2 - Treatments of Genetic Conditions and their Costs

E2 - Treatments of Genetic Conditions and their Costs

In this episode, we discuss the treatments of genetic conditions, exciting breakthroughs, and their costs. A conversation with Assistant Professor Roos van Westrhenen, Professors Katherine Payne and G...

3 Feb 202345min

E1 - Harnessing African Genetic Population for Global Health

E1 - Harnessing African Genetic Population for Global Health

As we return with our second series of Genetic Sounds, in this first episode we discuss the background of the African Society of Human Genetics, and Equity in African research. A conversation with Pro...

6 Jan 202341min

E6 - What is the future in genetics?

E6 - What is the future in genetics?

In this final episode, we discuss the wide topic of “What is the future in genetics?” Recorded with a live audience as one of the sessions at the 2022 European Society of Human Genetics conference...

1 Jul 20221h 3min

E1 - What Is A Genetic Syndrome?

E1 - What Is A Genetic Syndrome?

In this episode, we discuss "What is a genetic syndrome?". We ask whether we still need ‘conditions’, or can we just have genes? A conversation with Leslie Biesecker, NIH Distinguished Investigator ...

6 Mai 202247min

E3 - Let's talk about access to genetic services

E3 - Let's talk about access to genetic services

Bringing together the debate on access to genetic services, and discussing what can be done to improve the experience for individuals in need of these services. A conversation with Professor Dame Eli...

1 Apr 202242min

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