Navigating POTS: A Mother's Journey of Advocacy and Hope

Navigating POTS: A Mother's Journey of Advocacy and Hope

Welcome to another episode of 'Let's Talk about the POTS Life.' In this episode, we hear from Christy as she shares the four-year journey of her son, Gannon, who has been dealing with POTS (Postural Orthostatic Tachycardia Syndrome). Christy describes the challenges, misdiagnoses, and the eventual diagnosis that shed light on Gannon's condition. We also learn about the supportive role of key individuals and how Gannon's mental and physical health is steadily improving. This compelling narrative highlights the importance of parental advocacy, early diagnosis, and the varying presentations of POTS.

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Episoder(55)

POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon

POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patien...

2 Jun 50min

POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm

POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm

In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal j...

19 Mai 26min

What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)

What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)

If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps.In this episode, we break down what to focus on early...

5 Mai 21min

Pelvic Floor Dysfunction and POTS

Pelvic Floor Dysfunction and POTS

GI symptoms, pain clues, and why a consult mattersIn this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooke...

23 Apr 15min

From Surviving to Living Again: A POTS Life Graduate’s Journey

From Surviving to Living Again: A POTS Life Graduate’s Journey

In this episode of Let’s Talk About the POTS Life, we sit down with Veronica, a POTS Life graduate now in our graduate program, to talk about her journey from simply surviving to truly living again.Ve...

31 Mar 35min

What Makes The POTS Life Treatment Program Different

What Makes The POTS Life Treatment Program Different

In this episode of Let’s Talk About The POTS Life, we walk through the philosophy behind the POTS Life treatment program and why it’s structured the way it is.We talk about the importance of a lower-a...

17 Mar 18min

Is The POTS Life Program Safe for CFS, EDS & Severe Fatigue?

Is The POTS Life Program Safe for CFS, EDS & Severe Fatigue?

In this Q&A episode of Let’s Talk About The POTS Life, we’re answering one of the biggest questions we get:Is The POTS Life Program safe if I have chronic fatigue syndrome, fibromyalgia, EDS, or sever...

3 Mar 13min

Living with POTS: What It’s Like for a Spouse | Dysautonomia & Chronic Illness Support

Living with POTS: What It’s Like for a Spouse | Dysautonomia & Chronic Illness Support

What is it really like to love someone living with POTS and dysautonomia?In this episode of Let’s Talk About The POTS Life, my husband Cale shares what it was like watching me navigate years of undiag...

27 Feb 37min

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