Jenny Sage
Sarcoma Stories5 Mar 2025

Jenny Sage

On this episode we speak with Jenny Sage, a parent of a pediatric sarcoma survivor, Gracie. Jenny shares her perspective on advocating for children with sarcoma and others in the sarcoma and pediatric cancer communities. We discuss supporting children and families through a sarcoma diagnosis, the importance of emotional processing, and ways to help others.

Jenny’s Instagram: @jgoodmansagehttps://www.instagram.com/jgoodmansage/

Jenny’s LinkedIn: https://www.linkedin.com/in/jenny-goodman-sage-333200a4/

CIC-DUX4 Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/

Sarcoma Patient Experience Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/?fbclid=PAZXh0bgNhZW0CMTEAAaYWR9Zq2nOoOAxRVn6dJ78MeJ2nAVrq29fKMIGAcuToCKD2JxCQTLEbP4A_aem_5lsjjYo6Ug28apsTbN-mjw

Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704

Caregiver Sarcoma Connect Facebook Group: https://www.facebook.com/groups/1342913339758774

Advocacy Weekend: https://curesarcoma.org/get-involved/sarcoma-advocacy/sarcoma-advocacy-weekend/

Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/

SFA Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Episoder(24)

Pan Pantziarka

Pan Pantziarka

On this episode, we speak with SFA Director of Europe’s Strategy and Engagement, Pan Pantziarka. While he is an incredible staff member at SFA who supports SFA’s global work, he also has a sarcoma sto...

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Kate & Kristen

Kate & Kristen

In this episode, we sit down with Kate DeForge, who was diagnosed with undifferentiated pleomorphic sarcoma as a young adult. Kate opens up about what it’s been like navigating young adulthood with sa...

2 Apr 1h 3min

Simone Cheatham

Simone Cheatham

On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became actively involved after her late father, Hardin—lovingly referred to as “Dad” th...

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Julie Harp

Julie Harp

In this episode, we speak with Julie Harp, who shares her experience as a care partner to her son, Don, during his sarcoma journey and as he approached the end of life. Julie offers a unique and power...

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Crystal Mollica

Crystal Mollica

We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and ad...

9 Jan 57min

Carol Haslam

Carol Haslam

In this episode, we sit down with Carol Haslam of Sarcoma Cancer Ireland. Carol not only is a board member and driving force behind the organization’s operations, but she is also a synovial sarcoma su...

26 Nov 20251h 10min

Joel & Amanda Stetler

Joel & Amanda Stetler

On today’s episode, we’re joined by Joel and Amanda Stetler — a dynamic couple from California. Joel has been knowingly living with a low-grade fibromyxoid sarcoma, and in the ten years since his diag...

12 Nov 20251h 7min

Chris Barry

Chris Barry

On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay Area. Diagnosed with familial adenomatous poly...

29 Okt 202551min

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