Bria from Wales, a professional patient rights advocate
The POTScast9 Aug 2025

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

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Episoder(250)

E232:Dr. Steve Smith’s research update on treating pelvic venous disorders (and how it helps POTS and related syndromes)

E232:Dr. Steve Smith’s research update on treating pelvic venous disorders (and how it helps POTS and related syndromes)

Dr. Steve Smith's most updated research suggests that stenting or embolizing dysfunctional pelvic veins may improve a wide array of POTS symptoms and related syndromes in patients with pelvic venous d...

16 Nov 20241h 8min

E231:Lumia tracks blood flow to the head with Daniel Lee

E231:Lumia tracks blood flow to the head with Daniel Lee

Engineer and tech founder Daniel Lee created the Lumia to be a personal wearable device that fits in the ear and measures blood flow to the head, along with several other measurements and a phone app....

10 Nov 202435min

E230:POTS vs. Anxiety with Author/Advocate Christie Cox

E230:POTS vs. Anxiety with Author/Advocate Christie Cox

Christie Cox is a best-selling author and patient advocate working to help others have an easier journey than she has had.  Her latest article explains why POTS is often mistaken for anxiety, why this...

4 Nov 202439min

E229:Hormones and MCAS with Dr. Dempsey, Mast Cell Matters: Deep Dives on MCAS

E229:Hormones and MCAS with Dr. Dempsey, Mast Cell Matters: Deep Dives on MCAS

Another great episode where Dr. Dempsey explains how hormones can affect mast cells and vice verse, especially when it comes to puberty, menarche, pregnancy, and menopause.   More information about Dr...

27 Okt 202434min

E228: 11th Annual Standing Up to POTS 5K/2K LIVE

E228: 11th Annual Standing Up to POTS 5K/2K LIVE

Several POTS patients who traveled to Springfield, Ohio for the 11th Annual SUTP 5K/2K spoke with Jill live as they waited for the event to begin. These quick interviews are inspiring, and we hope tha...

19 Okt 202453min

E227:Dr. Cathy Pederson on Travel Tips with POTS

E227:Dr. Cathy Pederson on Travel Tips with POTS

Dr. Cathy Pederson shares numerous practical tips for making travel easier for people with POTS, many of which she has tested in her own family's extensive world travels with severe POTS and related c...

15 Okt 202452min

E226:Molly from VA has 2 children with POTS

E226:Molly from VA has 2 children with POTS

Molly's life has changed dramatically since two of her three children developed POTS - at different times, from different triggers and with different symptoms and severity.  Hear her story, insights a...

8 Okt 202442min

E225:Mold Remediation Expert Michael Rubino - Mast Cell Matters with Dr. Tania Dempsey

E225:Mold Remediation Expert Michael Rubino - Mast Cell Matters with Dr. Tania Dempsey

Michael Rubino is an air quality expert, environmental wellness advocate and President of Change the Air Foundation.  He is widely known as the trusted source for mold remediation expertise.  In this ...

1 Okt 202455min

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