Bria from Wales, a professional patient rights advocate
The POTScast9 Aug 2025

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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Episoder(250)

E78: Claire from Australia

E78: Claire from Australia

Claire developed POTS after a back injury. Work as a paramedic was triggering, and she found that she had to dig herself out of a dark hole. Volunteering for The POTS Foundation in Australia was part ...

6 Aug 202238min

E77: Abby from New York

E77: Abby from New York

Abby is a college sophomore with a love of music and crocheting. Like many, she put the pieces together to find her diagnosis. Abby is resilient despite the obstacles - finding friends who are support...

2 Aug 202230min

E76: Pediatric POTS and Related Disorders with Dr. Jeffrey Boris

E76: Pediatric POTS and Related Disorders with Dr. Jeffrey Boris

Dr. Boris is one of the top pediatric POTS docs in the world, and we were fortunate to have him share his thoughts on getting these highly achieving kids back to living their life. He covers a lot of ...

26 Jul 202246min

E75: Madison from Illinois

E75: Madison from Illinois

Madison was a competitive rock climber before she developed Lyme disease and POTS. She couldn't walk for 7 months, but has climbed her way back to working part time in a school and practicing meditati...

19 Jul 202239min

E74: Jolene from MN

E74: Jolene from MN

Jolene was married and enjoying an adventurous life in Florida when POTS struck. Like many, she was misdiagnosed and returned home to MN to decrease her need to fly. Now a meditation and mindfulness t...

16 Jul 202238min

E73: Accommodations for School, College, and the Workforce - 504 and IEP plans with Dr. Sally Brannan and Dr. Cathy Pederson

E73: Accommodations for School, College, and the Workforce - 504 and IEP plans with Dr. Sally Brannan and Dr. Cathy Pederson

Many chronically ill students require assistance to level to playing field at school. 504 plans and Individualized Education Plans are state mandated and can do just that. What's the best option for y...

12 Jul 202249min

E72: Rita from Massachusetts

E72: Rita from Massachusetts

Rita was an actress/dancer when POTS crept in and changed her life. She could no longer continue the physicality, and channeled her creative energy into writing. She credits the CHOP exercise protocol...

5 Jul 202227min

E71: Diane from Washington

E71: Diane from Washington

Diane is a retired dietician who shares her journey with POTS as well as her knowledge of the MTHFR gene mutations and nutritional changes to support that. She move to eastern Washington to decrease h...

2 Jul 202246min

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