When Autumn Comes: Seasons of Hope for Medical + Disability Moms23 Nov 2022

Tia | To Trach or Not to Trach: Making Medical Decisions for our Children

We know that it is scary to learn that your child(ren) may need extra pieces of medical equipment to survive. Medical technology should never be positioned to us as a "last resort" when in reality it is often life saving game changers for our kids.

Tia is here, sharing her family's story. I met Tia and Hendrix when Benji and I were in the NICU and then we continued to cross paths frequently when Lorelei and I were in the PICU.

Tia talks about what it was like when they began to discuss a tracheostomy for her son, how it made them feel, the fears they faced and where they are now.

"I think that when we think of medical devices or medical equipment with kids, it's like, 'Dang, what quality of life are they gonna have?' Well, they're gonna have the quality of life that you provide for them!" - Tia

I hope today's episode with Tia helped you see that even in the midst of big life decisions for your children, you have other families who see you and know how you feel. What big decisions have you had to make for your children? How has it made you feel? Let's talk about it in the When Autumn Comes Society or send me a DM on Instagram!

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WAC is a program of the Apricity Hope Project

Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don't miss out on our upcoming stories from other members of our medical and disabled community.

If you enjoyed this episode, please leave us a 5-star rating and a review so we can reach more 4 am moms with medically complicated, rare, beautiful children.

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Episoder(150)

Kat and Jordan | Good putty for maintaining a marriage

Now that Katrina and Jordan have celebrated, we can officially tell them, "Happy Anniversary." You see, when you have a child with medical complexity and they overhear that an important day is coming ...

25 Feb 52min

4 AM Happy Random Thursday

Katrina and Jordan are here today on just a normal typical Thursday. Links and resources: Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesS...

20 Feb 5min

Happy birthday lorelei | Ten years as a medical mom

This week marked Lorelei's tenth birthday. Five years on earth, five in heaven. This beautiful little girl with her epic hair, to match the Trolls she loved so much, is the reason we are all here toda...

18 Feb 34min

4 AM Trolls and good hair

Trolls have great hair. Suz and Katrina have great hair. Internet trolls though…we can't speak for their hair. Links and resources: Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conver...

18 Feb 6min

4 AM Goat Musings

4AM: Goat Musings Goats are cute, don't you want one??? Links and resources: Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow...

30 Jan 10min

Jenn | Navigating Self Harm

We've talked before about the feelings we experience when we receive a diagnosis for our child. We've talked about the realities of appointments, struggles with school, daily life. What happens when o...

28 Jan 1h 2min

4 AM Do you Wear Undies?

What's going on down there? You might not want to know… Links and resources: Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow...

23 Jan 5min

Virtual Pink House | Setting Sights on the New Year

By the time this episode airs, we are pretty well into the new year. How are your resolutions going? Did you make any resolutions? Did you break any resolutions? Remember the list we made last year of...

21 Jan 38min