12th Annual 5k/2k Invitation
The POTScast31 Aug 2025

12th Annual 5k/2k Invitation

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registration is at https://www.standinguptopots.org/annual-5k

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Episoder(250)

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Patrick Ussher, author of Understanding ME/CFS and Strategies for Healing

Patrick Ussher is an author, advocate, educator and patient himself.  His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/...

7 Okt 20251h 7min

Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert

Kirti Sivakoti, MD, pediatric dysautonomia and complex illness expert

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director...

28 Sep 202546min

Taylor’s pleasure cruise that turned into another journey

Taylor’s pleasure cruise that turned into another journey

Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions an...

22 Sep 202534min

Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters

Dr. Greg Plotnikoff on favorite new findings and a thiamin theory with Dr. Tania Dempsey on Mast Cell Matters

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conf...

14 Sep 202550min

Valerie is thriving in law school after a life-threatening reaction to medication

Valerie is thriving in law school after a life-threatening reaction to medication

Valerie had a life-threatening reaction to a medication administered in the ER, and she has had POTS ever since.  Valerie's advice to other patients with many sensitivities is to consider getting phar...

8 Sep 202541min

Dr. Jeffrey Boris on the genetic landscape of POTS

Dr. Jeffrey Boris on the genetic landscape of POTS

Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS.  Here he explains his team's new findings about the genetic signals found in pediatric POTS patients:   What ...

1 Sep 202545min

POTS Diaries with Mackenzie from Massachusetts

POTS Diaries with Mackenzie from Massachusetts

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book.  In this episode she describes her journey, including how a TikTok video ...

24 Aug 202526min

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