Muscles Controlling Eye Movements Not Affected by SMA & Never Give Up Searching for Your Advocates
SMA News Today’s multimedia associate, Price Wooldridge, discusses how adults with Spinal Muscular Atrophy (SMA) usually don’t experience weakness or impairment of eye muscles. Forums Director Kevin ...
17 Mar 20218min
#78: Discussing Switching Treatments, News Stories, and Recent Columns
In episode 78, host Kevin Schaefer talks with fellow SMA News Today contributor and Senior Director Michael Morale. They discuss Michael’s decision to switch back to Spinraza, treatment updates, and o...
16 Mar 202140min
The Challenges Of Life as a Teen And Young Adult With SMA & Being Denied Access to SMA Treatment
SMA News Today’s multimedia associate, Price Wooldridge, discusses the challenges of life as a teen and young adult with Spinal Muscular Atrophy (SMA). Also, SMA News Today content creator DeAnn Rung...
15 Mar 202113min
CHMP Favors EU Approval of Evrysdi as 1st Oral, At-home SMA Treatment & Discussing GI Issues
SMA News Today’s multimedia associate, Price Wooldridge, discusses the Committee for Medicinal Products for Human Use (CHMP) approval of Evrysdi as the first oral, at-home Spinal Muscular Atrophy (SMA...
12 Mar 20218min
Evrysdi Seen to Improve Survival, Motor Development of Infants with SMA Type 1
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi improving survival and motor development in infants with Spinal Muscular Atrophy Type 1. Forums Director Kevin Schaefer talk...
10 Mar 202110min
Mother Raises 4 Adopted Girls From China With SMA, Chronic Illnesses
SMA News Today’s multimedia associate, Price Wooldridge, discusses a mother who has adopted and is raising four girls from China with Spinal Muscular Atrophy (SMA). Also, a variety of topics are bein...
8 Mar 20219min
Brain Involvement in SMA Type 1 Still Poorly Understood & Struggling to Personalize New Wheelchair
SMA News Today’s multimedia associate, Price Wooldridge, discusses why brain involvement in Spinal Muscular Atrophy Type 1 is still poorly understood. Also, DeAnn Runge talks about how she’s struggli...
5 Mar 20218min
Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children
SMA News Today’s multimedia associate, Price Wooldridge, discusses the varying perspectives from parents on Spinraza therapy for their children. Forums Director Kevin Schaefer reads a column by Ari A...
3 Mar 202114min
