Zolgensma’s Price And Its 'Cure One, Cure Many' Potential & Concerts Accessibility
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses an interview where researchers talk about Zolgensma’s price, and its cure one, cure many potential. Also, Community Develo...
21 Aug 20199min
#40 - Interview With Kellie Cusack
In episode 40 of the SMA News Today Podcast, host Kevin Schaefer interviews Kellie Cusack. Kellie lives in New Jersey with her family, and is currently studying journalism at a community college. She ...
20 Aug 201928min
High Levels of Alpha-COP Proteins Seems To Ease SMA Severity in Mouse Models & Spinraza For 2 Years
We discuss how raising levels of Alpha-COP proteins, seems to ease SMA disease severity in mouse models. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about being on Spinraz...
19 Aug 20197min
The "Rare Barometer” Is Helping Eurordis Shape EU Rare Disease Policies & SMA Community Diversity
We discuss “Rare Barometer”, which is a program that is helping Eurordis shape EU rare disease policies. Also, Community Development Manager Kevin Schaefer reads from his latest column about diversity...
16 Aug 20199min
Zolgensma For SMA Types 1, 2 And 3, More Options On The Way & Angela Titcombe
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how patients with SMA Types 1, 2, & 3, options for Zolgensma exist, and more may be on the way. Also, Community Developmen...
14 Aug 201911min
Ontario Patients Are Granted With Wider Access To Spinraza & Current Treatments, Brighter Futures
We discuss how SMA patients in Ontario are granted wider access to Spinraza. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how current treatments for SMA are givin...
12 Aug 20198min
Family Says Zolgensma Saved All of Their Lives; Their Gene Therapy & Tyler Dukes
We discuss a family that states Zolgensma saved all of their lives, and they share their families journey through gene therapy, Also, Community Development Manager Kevin Schaefer reads from Tyler Duke...
9 Aug 20198min
Zolgensma's Potential To Change The Whole Landscape of SMA & Melissa Milinovich's Story
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how Zolgensma has the potential to change the whole landscape of SMA. Also, Community Development Manager Kevin Schaefer re...
7 Aug 20199min
