#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

In this special edition of the SMA News today podcast, Forums Editor Michael Morale discusses AveXis' recent announcement that experimental SMA gene therapy AVXS-101 has been submitted to the US Food and Drug Administration (FDA) for approval.

Episoder(443)

Study Suggests The Interplay of Motor Neurons and Glial Cells is At The Root of SMA

Study Suggests The Interplay of Motor Neurons and Glial Cells is At The Root of SMA

Forums Director Kevin Schaefer reads from Brianna Albers’ latest column “How Do We Maintain Post-traumatic Growth?” SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study sugg...

15 Mai 20208min

Differences Between Risdiplam and SRK-015, Dealing With Anxiety & Taking Things For Granted

Differences Between Risdiplam and SRK-015, Dealing With Anxiety & Taking Things For Granted

In the forums Michael Morale’s latest video, which points out the differences between risdiplam and SRK-015 as potential SMA treatments, has been a topic of conversation. Brianna Albers' series on d...

13 Mai 20205min

How Risdiplam Defies SMA “Natural History” in Type 1 Infants, According to FIREFISH Study Data

How Risdiplam Defies SMA “Natural History” in Type 1 Infants, According to FIREFISH Study Data

Forums moderator DeAnn Runge shares her experience of getting Spinraza amidst the COVID pandemic. SMA News Today’s multimedia associate, Price Wooldridge, discusses how Risdiplam defies SMA “natural ...

11 Mai 202011min

How Growth-Friendly Spinal Implants May Help SMA Children Before Fusion Surgery

How Growth-Friendly Spinal Implants May Help SMA Children Before Fusion Surgery

Forums Director Kevin Schaefer talks about an anthology of essays from the New York Times series on disability. SMA News Today’s multimedia associate, Price Wooldridge, discusses how growth-friendly ...

8 Mai 20206min

How SMA-Related Humor Presents Itself in Unexpected Moments, Fundraising Options & Online Therapy

How SMA-Related Humor Presents Itself in Unexpected Moments, Fundraising Options & Online Therapy

Forums Director Kevin Schaefer talks about how SMA-related humor presents itself in unexpected moments. And also, this week the topics included on the forums range from discussing fundraising options ...

6 Mai 20205min

#57 - Interview with Heather Kerstetter

#57 - Interview with Heather Kerstetter

In episode 57, host Kevin Schaefer interviews Heather Kerstetter from Philadelphia, Pennsylvania. Heather is a social worker who has SMA Type 3. She talks about growing up with SMA, relationships, and...

5 Mai 202026min

How Taking Part in Adapted Sports Improves Mental Health in Patients With SMA

How Taking Part in Adapted Sports Improves Mental Health in Patients With SMA

Forums moderator DeAnn Runge discusses how looking at what makes her life easier now determines what would make her life easier moving forward. SMA News Today’s multimedia associate, Price Wooldridge...

4 Mai 20208min

Discussing The Lack of Muscle Cell Signaling Which is Seen to Kill Motor Neurons in SMA-LED2

Discussing The Lack of Muscle Cell Signaling Which is Seen to Kill Motor Neurons in SMA-LED2

SMA News Today’s multimedia associate, Price Wooldridge, discusses the lack of muscle cell signaling which is seen to kill motor neurons in SMA-LED2. SMA News Today’s Senior Director of Multichannel ...

1 Mai 20206min

Populært innen Helse

fastlegen
lydartikler-fra-aftenposten
rss-gukild-johaug
hvordan-har-du-det-mann
psykodrama
leger-om-livet
rss-garne-damer
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
foreldreradet
rss-lopedrommen
morten-ramm-lar-kakla-ga-til-du-sovner
hjernesterk
bak-fasaden-en-reise-i-livet-med-sykepleier-ine
klimaks
rss-lev-vel
sinnsyn
hormonelle-frida
g-punktet
rss-kunsten-a-leve
treningsprat