Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships

Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships

We discuss how China has approved Spinraza for most SMA patients. Also, Community Editor Kevin Schaefer reads from his review of a book about inter-abled relationships by Ben Mattlin. Mattlin is a Los Angeles-based writer with SMA Type 2, and this review is available on our main website and on our forums. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

Episoder(443)

Book, Movie and Spotify Recommendations & Study Recommends a Lower Radiation Dose for Spinraza Scans

Book, Movie and Spotify Recommendations & Study Recommends a Lower Radiation Dose for Spinraza Scans

Forums Director Kevin Schaefer shares some book, movie, and Spotify recommendations for people who are on quarantine. SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which ...

27 Mar 20208min

Alternative Solutions to Physical Therapy During the COVID-19 Pandemic

Alternative Solutions to Physical Therapy During the COVID-19 Pandemic

Forums Director Kevin Schaefer talks about alternative solutions to physical therapy. As a result of the COVID-19 pandemic, he has to refrain from going to his appointments for now. Also, believe it ...

25 Mar 20204min

New Test Screens 420 Genes for Markers of SMA & A Message to Friends, Family About COVID-19

New Test Screens 420 Genes for Markers of SMA & A Message to Friends, Family About COVID-19

Forums moderator DeAnn Runge shares her message to friends and family in regards to COVID-19 and their lives being turned upside down. SMA News Today’s multimedia associate, Price Wooldridge, discuss...

23 Mar 20205min

Tips For Self-Isolation During the Coronavirus & SYT13 Gene Can Prolong Life in Mice With SMA

Tips For Self-Isolation During the Coronavirus & SYT13 Gene Can Prolong Life in Mice With SMA

Forums Director Kevin Schaefer shares some of his tips for self-isolation during the Coronavirus (COVID-19) outbreak. SMA News Today’s multimedia associate, Price Wooldridge, discusses how the synapt...

20 Mar 20206min

Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown

Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown

One of the main topics of conversation over on the forums is COVID-19. Posted are links to resources and tips on staying productive during lockdown. DeAnn also discusses where to find the latest SMA...

18 Mar 20205min

#54 - Roundtable About Corona Virus

#54 - Roundtable About Corona Virus

In episode 54, Michael and I discuss the global outbreak of Coronavirus (COVID-19). We share our tips for how others in the SMA community can best protect themselves, as well as their caregivers. Plea...

17 Mar 202018min

Risdiplam Under FDA Review & How the Lack of SMA Protein May Also Directly Contribute to SMA

Risdiplam Under FDA Review & How the Lack of SMA Protein May Also Directly Contribute to SMA

Anticipation is growing as Roche/Genentech's treatment risdiplam, the first oral medication to treat SMA, is under FDA review. SMA News Today’s multimedia associate, Price Wooldridge, discusses how t...

16 Mar 20207min

Importance of Physical Therapy & Institute for Gene Therapies to Modernize Reimbursement Framework

Importance of Physical Therapy & Institute for Gene Therapies to Modernize Reimbursement Framework

SMA News Today’s Senior Director of Multichannel Content, Michael Morale, discusses the importance of physical therapy, and how physical therapy can not only help avoid problems, but also correct some...

13 Mar 20205min

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