Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships

Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships

We discuss how China has approved Spinraza for most SMA patients. Also, Community Editor Kevin Schaefer reads from his review of a book about inter-abled relationships by Ben Mattlin. Mattlin is a Los Angeles-based writer with SMA Type 2, and this review is available on our main website and on our forums. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

Episoder(443)

#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his effo...

29 Mar 201837min

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018 by SMA News Today

29 Mar 20183min

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018 by SMA News Today

7 Mar 20184min

#6 - Paul Guarino, Founder of PG Sports

#6 - Paul Guarino, Founder of PG Sports

SMA News Today interviews PG Sports Founder Paul Guarino. Visit the PG Sports homepage at: https://pg-sports.com

1 Mar 201825min

#5 - Interview With Brynne Willis, Johns Hopkins University Graduate Student

#5 - Interview With Brynne Willis, Johns Hopkins University Graduate Student

In SMA News Today's fifth podcast, Community Editor Kevin Schaefer interviews Brynne Willis. Brynne is a graduate student at Johns Hopkins University where she is studying the psychological effects of...

13 Feb 201823min

#4 - Interview With Dr. Danielle Sheypuk

#4 - Interview With Dr. Danielle Sheypuk

SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.

22 Jan 201833min

#3 - Interview with Amazon Operations Manager Josh Garrison

#3 - Interview with Amazon Operations Manager Josh Garrison

In SMA News Today's third podcast, Community Editor Kevin Schaefer interviews Josh Garrison -- a person with SMA type 2 who works as an operations manager for Amazon. Josh discusses his work at Amazon...

12 Des 201724min

SMA News & Perspectives - November 28, 2017

SMA News & Perspectives - November 28, 2017

SMA News & Perspectives - November 28, 2017 by SMA News Today

30 Nov 20173min

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