#33 - Interview With John Scurto
In episode 33 of the SMA News Today Podcast, host Kevin Schaefer interviews John Scurto from Boca Raton, Florida. John is a senior at Florida Atlantic University, studying business management, and he ...
6 Mai 201930min
Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships
We discuss how China has approved Spinraza for most SMA patients. Also, Community Editor Kevin Schaefer reads from his review of a book about inter-abled relationships by Ben Mattlin. Mattlin is a Los...
5 Apr 201910min
#30 - Roundtable Discussion - Featured Articles
In episode 30 of the SMA News Today Podcast, Kevin Schaefer and Michael Morale discuss the latest news regarding Spinraza (nusinersen) and Zolgensma (AVXS-101). Both of these drugs are designed to tre...
25 Mar 201930min
Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person
We discuss a study where perceived fatigue was not linked to physical factors regarding the quality of life in SMA patients. Also, SMA News Today’s Director of Multimedia, Michael Morale, talks about ...
11 Feb 20199min
#27 Interview With Michele Erwin
In episode 27 of the SMA News Today Podcast, Community Editor Kevin Schaefer interviews Michele Erwin, whose son Greyson has SMA. Michele is the founder of All Wheels Up, an organization dedicated to ...
11 Feb 201919min
#25 - Interview With Tyler Dukes
SMA News Today Community Editor Kevin Schaefer interviews Tyler Dukes. Tyler has SMA Type 2, and he shares his perspectives about growing up with SMA, and the hurdles he's faced throughout his life.
7 Jan 201953min
#24 - Abby Quinn & Kristen
SMA News Today Community Editor Kevin Schaefer interviews Abby Quinn and Kristen Bathe -- childhood friends who run an inclusive fashion line for people with disabilities. Read all about them here: ht...
16 Des 201830min
#23 Roundtable Discussion - Importance Of Physical Therapy
SMA News Today Community Editor Kevin Schaefer and Forums and Multimedia Director Michael Morale discuss the advantages of taking physical therapy while on active treatment with Spinraza. Kevin discus...
7 Des 201854min
