European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

We discuss how European SMA advocates question the EU’s willingness to reimburse for Zolgensma. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about claiming your independence while living with SMA. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

Episoder(443)

Zolgensma Helped Pre-symptomatic Babies Achieve Age-Appropriate Motor Milestones

Zolgensma Helped Pre-symptomatic Babies Achieve Age-Appropriate Motor Milestones

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma helped pre-symptomatic babies with Spinal Muscular Atrophy (SMA) achieve age-appropriate motor milestones. Instagram i...

5 Apr 202111min

Zolgensma Continues to Prevent Motor Function Decline for 5 Years

Zolgensma Continues to Prevent Motor Function Decline for 5 Years

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgenzma continues to prevent motor function decline for five years for patients with Spinal Muscular Atrophy (SMA). Also, SMA ...

2 Apr 202111min

Evrysdi Leads to Longer-term Benefits for SMA Types 2, 3, Data Show

Evrysdi Leads to Longer-term Benefits for SMA Types 2, 3, Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Evrysdi leads to longer-term benefits for Spinal Muscular Atrophy (SMA) patients, Types 2 and 3. Forums Director Kevin Schaefer ...

31 Mar 202111min

Zolgenzma Found To Be Safe And Effective in SMA Toddlers & The Importance of Schedules And Routines

Zolgenzma Found To Be Safe And Effective in SMA Toddlers & The Importance of Schedules And Routines

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being found safe and effective in Spinal Muscular Atrophy (SMA) toddlers. Also, DeAnn Runge welcomes new listeners and for...

29 Mar 202110min

Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology

Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology

SMA News Today’s multimedia associate, Price Wooldridge, discusses how treatment with Evrysdi is safe in Spinal Muscular Atrophy (SMA) patients previously given other therapies. DeAnn Runge talks abo...

26 Mar 20219min

SMA Foundation and PTC Joint Efforts to Fund Regenerative Medicine Research

SMA Foundation and PTC Joint Efforts to Fund Regenerative Medicine Research

SMA News Today’s multimedia associate, Price Wooldridge, discusses the SMA Foundation and PTC Therapeutics joint efforts to fund regenerative medicine research. Also, Forums Director Kevin Schaefer s...

24 Mar 20216min

Reldesemtiv Aids Motor and Respiratory Strength in Types 2 and 3, Early Trial Finds

Reldesemtiv Aids Motor and Respiratory Strength in Types 2 and 3, Early Trial Finds

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the therapy, Reldesemtiv, aids motor and respiratory strength in Spinal Muscular Atrophy (SMA) Types 2 and 3. Also, with vaccin...

22 Mar 20219min

Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland

Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being added to the list of eligible medications for Spinal Muscular Atrophy (SMA) Type 1 patients in England and Scotland. ...

19 Mar 20219min

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