I Am Beyond Thankful
About IBD16 Okt 2018

I Am Beyond Thankful

Is it possible to take the diagnosis that turned your world upside down and turn it into a positive force in your life? My guest on About IBD is Lilly Stairs, Head of Patient Advocacy at Clara Health who lives with Crohn's disease did exactly that. First diagnosed with psoriatic arthritis, it was only after Lilly's symptoms weren't improving and she was in and out of the hospital that healthcare providers finally discovered a Crohn's disease flare-up in her small bowel. Lilly found the right mix of treatments to get her Crohn's under control and now works with her team at Clara to connect patients to clinical trials. Find Lilly Stairs at Find Clara Health at: "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Episoder(200)

Why Representation Matters for the LGBTQ+ Community

Why Representation Matters for the LGBTQ+ Community

There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the ...

11 Feb 202551min

How to Thrive as a Parent with IBD Featuring Jaime Holland

How to Thrive as a Parent with IBD Featuring Jaime Holland

Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision...

28 Jan 202540min

Navigating Hernia Surgery Featuring Mike Tresca

Navigating Hernia Surgery Featuring Mike Tresca

Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the sur...

7 Jan 20251h 22min

Amber's 2024 in Books

Amber's 2024 in Books

Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed ...

22 Des 202424min

"Fine" Dining With Crohn's Disease Featuring Michael Ornelas

"Fine" Dining With Crohn's Disease Featuring Michael Ornelas

What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continu...

10 Des 20241h 2min

"3 Kidneys, No Colon" With Dave Piontkowski

"3 Kidneys, No Colon" With Dave Piontkowski

For people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative c...

26 Nov 202440min

The Hosts of Bowel Moments

The Hosts of Bowel Moments

Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative coliti...

12 Nov 202436min

Finding the Balance - Honoring Veteran's Day With Stephanie Gish

Finding the Balance - Honoring Veteran's Day With Stephanie Gish

Stephanie Gish, host of the Crohn's Fitness Food podcast, gives the details of her journey with Crohn's disease and IGA nephropathy. Stephanie's Crohn's symptoms began in 2003, but she was initially m...

29 Okt 202459min

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