I'm Sick and Nobody Will Help Me
About IBD30 Okt 2018

I'm Sick and Nobody Will Help Me

What have you done when you couldn't get anyone to take the symptoms of IBD seriously and you found yourself out of options? For Meredith, the road to a Crohn's disease diagnosis was long and so frustrating that she wound up pleading for help from a specialist she'd never met. Going online to connect with other patients also took Meredith to places both light and dark, and she, Jaime, and I sort through our various experiences with social media as well as how we can work towards creating more hopeful content for new IBD patients in the future. Concepts mentioned on this episode: What Are Mast Cells?: https://www.verywellhealth.com/what-are-mast-cells-1944889 What Is Gastroparesis?: https://www.verywellhealth.com/what-is-gastroparesis-1741788 Find Meredith Smolen at: Find Jaime Weinstein at: Find Amber J Tresca at: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Episoder(200)

Behind the Scenes of About IBD

Behind the Scenes of About IBD

Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: ...

25 Feb 202514min

Why Representation Matters for the LGBTQ+ Community

Why Representation Matters for the LGBTQ+ Community

There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the ...

11 Feb 202551min

How to Thrive as a Parent with IBD Featuring Jaime Holland

How to Thrive as a Parent with IBD Featuring Jaime Holland

Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision...

28 Jan 202540min

Navigating Hernia Surgery Featuring Mike Tresca

Navigating Hernia Surgery Featuring Mike Tresca

Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the sur...

7 Jan 20251h 22min

Amber's 2024 in Books

Amber's 2024 in Books

Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed ...

22 Des 202424min

"Fine" Dining With Crohn's Disease Featuring Michael Ornelas

"Fine" Dining With Crohn's Disease Featuring Michael Ornelas

What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continu...

10 Des 20241h 2min

"3 Kidneys, No Colon" With Dave Piontkowski

"3 Kidneys, No Colon" With Dave Piontkowski

For people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative c...

26 Nov 202440min

The Hosts of Bowel Moments

The Hosts of Bowel Moments

Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative coliti...

12 Nov 202436min

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