Summer of Activism: It's Now or Never
About IBD19 Aug 2019

Summer of Activism: It's Now or Never

If you have the chance to speak on behalf of the inflammatory bowel diseases (IBD) community: would you take it? At first, volunteer and Crohn's disease advocate Keri Flaccomio wondered if she had a right to attend a day on the hill event with the Crohn's and Colitis Foundation and lobby in Washington DC on behalf of the IBD community. Her experiences while she was on the hill helped her to understand that not only did she have the right, but she also had a responsibility to tell her story — and the stories of others living with IBD. Learn how Keri made her hill meetings more effective and how they helped her to become empowered as an activist. Find Keri Ann Flaccomio at: Find Amber J Tresca of About IBD at: Credits:

Episoder(200)

Behind the Scenes of About IBD

Behind the Scenes of About IBD

Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: ...

25 Feb 202514min

Why Representation Matters for the LGBTQ+ Community

Why Representation Matters for the LGBTQ+ Community

There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the ...

11 Feb 202551min

How to Thrive as a Parent with IBD Featuring Jaime Holland

How to Thrive as a Parent with IBD Featuring Jaime Holland

Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision...

28 Jan 202540min

Navigating Hernia Surgery Featuring Mike Tresca

Navigating Hernia Surgery Featuring Mike Tresca

Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the sur...

7 Jan 20251h 22min

Amber's 2024 in Books

Amber's 2024 in Books

Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed ...

22 Des 202424min

"Fine" Dining With Crohn's Disease Featuring Michael Ornelas

"Fine" Dining With Crohn's Disease Featuring Michael Ornelas

What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continu...

10 Des 20241h 2min

"3 Kidneys, No Colon" With Dave Piontkowski

"3 Kidneys, No Colon" With Dave Piontkowski

For people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative c...

26 Nov 202440min

The Hosts of Bowel Moments

The Hosts of Bowel Moments

Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative coliti...

12 Nov 202436min

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