Share Your Story: Ira Hughes

Share Your Story: Ira Hughes

Ira Hughes and his family went through two and half years of fighting pediatric cancer with their daughter Audrey before she passed away in 2017.

  • 01:17: Can you take us back to the very beginning and what happened with your daughter?
  • 03:33: She progressed while we got some physical therapy, everything was looking like a normal kid.
  • 05:16: They went to do some research and found four documented cases that had ever originated in the spinal quarter before.
  • 07:16: She was getting chemo.
  • 09:20: The hospital we had gone to had partnered with MD Anderson in Houston.
  • 11:03: It's a very aggressive growing cancer.
  • 15:05: She always made people laugh, made us laugh.
  • 17:56: Phase one trial is a significant trial and it's mainly for safety at that point to see if the patient can tolerate the regimen.
  • 20:48: I can't imagine trying to fight cancer right now and having our families more separated than they were during that time.
  • 23:29: Do you mind if we talk about the after?
  • 26:01: We're going to be a strong family of four or a strong family of three when we get out of this.
  • 28:42: I try to read a book a week or listen to a book a week.
  • 30:13: I think my wife and I had done a good job of letting each other have the time that we need to have to heal.
  • 32:30: I felt like I was giving away my child.
  • 34:07: When did Audrey die?
  • 37:10: I felt like I was in a place where I generally would be happy, but I wasn't giving myself permission to be happy yet.
  • 39:08: I almost threw myself off the roof.
  • 41:17: Our battle through cancer was on social media.
  • 46:03: What is one thing you wish you had known at the very beginning of Audrey's cancer journey?
  • 47:09: If you could only do one thing to improve health care in the U.S., what would it be and why?
  • 48:37: Thriver Rapid Fire
  • 50:40: Aside from Cancer U, what is one resource you recommend for cancer patients and caregivers?

Resources

Episoder(154)

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