A Mama’s Xtra Love

A Mama’s Xtra Love

Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.

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Episoder(72)

Fragile X Author Series: Elizabeth Griffin

Fragile X Author Series: Elizabeth Griffin

Elizabeth Griffin is the author of the book Fragile X Fragile Hope, and is the Mother of Zack, a 23 year old young man with Fragile X Syndrome. Learning that she was a Fragile X Carrier in her mid- 30...

27 Aug 202039min

A Fragile X Diagnosis Story Series: Episode 4

A Fragile X Diagnosis Story Series: Episode 4

On this weeks episode of Talk FX, we’re joined with Ashley, mom of her 2 year old son Sebastian who has full- mutation Fragile X. She shares the process of receiving the FX diagnosis and all the emoti...

23 Aug 202041min

A Fragile X Diagnosis Story Series: Episode 3

A Fragile X Diagnosis Story Series: Episode 3

On this weeks episode of Talk FX, we continue with episode 3 of our serious “Fragile X Diagnosis Stories.” We have the pleasure of talking with Katie, Mom of Quinton who was diagnosed with Fragile X a...

11 Aug 202030min

A unique Fragile X Diagnosis Story

A unique Fragile X Diagnosis Story

In this week’s episode of Talk FX, we’re joined with Ashley, who has a 19 month old boy named Austin with the full-mutation Fragile X Syndrome. She shares with us her sons unique diagnosis journey tha...

4 Aug 202034min

A Fragile X Full-Mutation Diagnosis story from a Mom of 2 FX Children - Boy & Girl

A Fragile X Full-Mutation Diagnosis story from a Mom of 2 FX Children - Boy & Girl

In this weeks episode of Talk FX, we are joined with special guest Erika Vasquez who shares with us her FX diagnosis journeys for her son and daughter! She also shares her perspective on the upcoming ...

30 Jul 202056min

Step Up for Fragile X with FRAXA Research Foundation

Step Up for Fragile X with FRAXA Research Foundation

In this weeks episode, we welcome back the FRAXA Research Foundation! We talk with Elle Skala, creator of The Step Up for Fragile X Virtual Event for Fragile X Awareness Day! She discusses the purpose...

20 Jul 202015min

Potty Training & Life Skills for children with Fragile X

Potty Training & Life Skills for children with Fragile X

In this weeks episode of Talk FX, we’re joined with Wendy and Debbie, Both Mom’s of boys with Fragile X Syndrome. They get real about the journey of potty training children with FX! The successful and...

14 Jul 202029min

Fragile X Awareness Month & The NFXF International Fragile X Conference Virtual Series

Fragile X Awareness Month & The NFXF International Fragile X Conference Virtual Series

In this weeks episode of Talk Fragile X, Mom’s of Children with FX, Kelsie and Debbie share the importance of Fragile X Awareness month, and ways to create more awareness of FX even during these curre...

30 Jun 202035min

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