CAH PULSE
CAH Pulse takes us on a journey to educate and bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH). Each month patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice living with this challenging condition. Our hope is to further connect and champion this incredible community. *This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*

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Episoder(22)

Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH

Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH

In this gripping episode Dina and Stephanie tackle a most important and controversial topic, putting an end to the dangerous stigma which far too many children (both boys and girls), parents and adult...

25 Jun 202538min

Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal

Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal

In the mid 1960's, Tim was diagnosed with CAH just weeks after he was born.  His CAH simply didn’t set off many alarms with his medical team, nor his parents. As a result, he seemed to breeze through ...

17 Apr 202534min

Season 2 | Episode 6: Dr Su: Words of Wisdom: Clearing up the Confusion of Stress Dosing

Season 2 | Episode 6: Dr Su: Words of Wisdom: Clearing up the Confusion of Stress Dosing

In this masterfully eye-opening episode, Stephanie and Dina pick the brilliant mind of CARES Foundation's Medical Director, and Professor & Pediatric Endocrinologist at the NY Presbyterian Weill Corne...

5 Mar 202532min

Season 2 | Episode 5: Raelie: CAH Does Not Define THIS Ten Year Old!

Season 2 | Episode 5: Raelie: CAH Does Not Define THIS Ten Year Old!

Is ten-year-old Raelie unphased by her CAH? Find out in this important episode of CAH Pulse where Stephanie and Dina speak with Amanda and her strong, brave and laid back 5th grade daughter, Raelie. T...

11 Feb 202535min

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

In another compelling episode, Dina and Stephanie introduce us to Abby, a mom of two small boys, one of which is her “salt waster”. Little Nash is only seven months old but he is already doing amazing...

7 Jan 202531min

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

In this memorable episode, Ryan, who has seemed to manage his classic salt wasting CAH head-on with an organized, matter of fact approach, has been faced with new challenges to consider now that he is...

29 Okt 202437min

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the start, she had little unde...

3 Sep 202438min

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Marc wasn't formally diagnosed with salt wasting CAH until he was the age of 3. Up to that point, Marc's mother had spent his infant and pre-school years simply trying to prevent him from vomiting all...

17 Mai 202437min

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