GOALS: An ALS United Podcast

GOALS: An ALS United Podcast

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

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Episoder(70)

GOALS Podcast 21 Raziel Green on Living with familial ALS, clinical trials, and Qalsody

GOALS Podcast 21 Raziel Green on Living with familial ALS, clinical trials, and Qalsody

Raziel Green is living with a genetic form of ALS due to the SOD1 mutation. In this ALS United Mid-Atlantic GOALS Podcast, Raziel talks about her diagnosis, participation in a clinical trial, and her ...

8 Jul 202529min

GOALS Podcast 20: Placing Stones and Honoring the Legacy of Loved Ones with ALS

GOALS Podcast 20: Placing Stones and Honoring the Legacy of Loved Ones with ALS

Placing Stones joins the ALS United Mid-Atlantic GOALS Podcast to discuss a special offer to preserve the legacies of loved ones, including those with ALS.  To the ALS United Mid-Atlantic Community, W...

1 Jul 202530min

GOALS Podcast: Jayne Etskovitz discusses ALS and Social Work

GOALS Podcast: Jayne Etskovitz discusses ALS and Social Work

Jayne Etskovitz joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work supporting ALS patients and caregivers. Jayne shares examples of how resource groups benefit all aspects of ALS care...

24 Jun 202531min

GOALS Podcast 18 with Doug Yocum - Review of 2025 Philadelphia Phillies ALS Awareness Night

GOALS Podcast 18 with Doug Yocum - Review of 2025 Philadelphia Phillies ALS Awareness Night

Doug Yocum joins the ALS United Mid-Atlantic GOALS Podcast to discuss living with ALS, his initial ALS symptoms, and a review of his experience with the Philadelphia Phillies for ALS Awareness Night a...

17 Jun 202531min

ALS United Mid-Atlantic GOALS Podcast 17 with Sheri and David from ALS Network

ALS United Mid-Atlantic GOALS Podcast 17 with Sheri and David from ALS Network

In this latest ALS United Mid-Atlantic GOALS Podcast, Sheri Strahl, MPH, MBA and David Buseck share their experience and insight into ALS research through their work at ALS Network. Topics include fil...

10 Jun 202538min

GOALS Podcast 16 with Dr. James Grogan and Dr. Andrew Geronimo on ALS and BCI

GOALS Podcast 16 with Dr. James Grogan and Dr. Andrew Geronimo on ALS and BCI

Drs. James Grogan and Andrew Geronimo of  @PennStateHealth  join the ALS United Mid-Atlantic GOALS Podcast to discuss advances in Brain Computer Interface and other communication tools and how they be...

3 Jun 202541min

GOALS Podcast 15 with Paul Melmeyer of MDA on ACT for ALS and Medicaid

GOALS Podcast 15 with Paul Melmeyer of MDA on ACT for ALS and Medicaid

Paul Melmeyer from  ⁨@MDA⁩  joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaborating on ALS Advocacy, recent advocacy successes like the ALS Disability Insurance Access Act, reauthoriz...

27 Mai 202545min

GOALS Podcast 14 with Laura Ness of Hearts for Home Care

GOALS Podcast 14 with Laura Ness of Hearts for Home Care

Laura Ness with Hearts for Home Care is the featured guest on the latest ALS United Mid-Atlantic GOALS Podcast. Topics include advocating for home care access, how people with ALS benefit from home ca...

20 Mai 202535min

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