Hacking Hypermobility

Hacking Hypermobility

Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.

Episoder(43)

2.16 Why Get Diagnosed? - Part Two

2.16 Why Get Diagnosed? - Part Two

On this week's episode, the Two Bendy Mommas continue to discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagno...

18 Jul 202444min

2.15 Why Get Diagnosed?

2.15 Why Get Diagnosed?

On this week's episode, the Two Bendy Mommas discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey...

11 Jul 20241h 18min

2.14 - Hypermobile Dudes Part 3: The Conclusion

2.14 - Hypermobile Dudes Part 3: The Conclusion

This week, Luna, Shelli, and our special guest panel members Brandon Buccieri (@susanpossibly), Doug Kremer (@DougKrem) and Bryan Jewell (@kindaspoony) wrap up their discussion on how Hypermobile Ehle...

27 Jun 202446min

2.13 - Patient Advocacy & Insurance

2.13 - Patient Advocacy & Insurance

We're back this week with the final segment of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, e...

13 Jun 202426min

2.12 - Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS

2.12 - Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS

The Bendy Mommas continue to look into understanding the intersectionality of Hypermobility by talking to some Bendy Dudes. We gathered a panel of men with Hypermobile Ehlers-Danlos Syndrome (hEDS) to...

30 Mai 202443min

2.11 - The Conversation With a Patient Advocate, Part 3

2.11 - The Conversation With a Patient Advocate, Part 3

Two episodes in one day? Why not? We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so ...

23 Mai 202437min

2.10 - Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS

2.10 - Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS

On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects an often underrepresented community within our Zebra Herd: Men. In our first-ever panel interview, we tal...

23 Mai 202454min

2.9 - The Conversation With a Patient Advocate Continues

2.9 - The Conversation With a Patient Advocate Continues

We're back this week with Part 2 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "...

16 Mai 202435min

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