Living with Long covid

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Episoder(107)

Post exertional malaise (PEM)/ Post exertional symptom exacerbation (PESE) Why is it so confusing?

Post exertional malaise (PEM)/ Post exertional symptom exacerbation (PESE) Why is it so confusing?

Send a text This episode considers PEM/PESE why is it so difficult to understand, manage and avoid? I discuss what PEM/PESE is and how is triggered and what that means to daily life. I have spoken wi...

19 Mar 202336min

How are you?

How are you?

Send a text On this episode of the podcast I am talking about a very simple question, most people ask most days "how are you?" Such a simple 3 little words, so why do they fill me with dread? Simply ...

12 Mar 202328min

Planning and preparing to return to work

Planning and preparing to return to work

Send a text In this episode of the podcast I thought it would be useful to discuss planning and preparing for a return to work. I wanted to share my lived experience of returning to work and what pro...

5 Mar 202331min

Long Covid Advocate Emma Benyon, shares her journey, symptoms, gaslighting and living life with Long Covid

Long Covid Advocate Emma Benyon, shares her journey, symptoms, gaslighting and living life with Long Covid

Send a text I have another inspirational guest on the podcast today. Emma is a nurse who has Long Covid with multiple organ damage. Emma lost her NHS job and experienced gaslighting at a time when sh...

26 Feb 202335min

In sickness and in health

In sickness and in health

Send a text In this episode of the podcast I talk about relationships "in sickness and in health". I discuss how chronic illness/disability can impact on relationships, this does not just come down to...

19 Feb 202326min

Podcast guest and fellow nurse Kerry on advocacy, symptoms and living with Long Covid

Podcast guest and fellow nurse Kerry on advocacy, symptoms and living with Long Covid

Send a text On this episode I have a guest, Kerry is a fellow nurse and advocate for Long Covid. A founding and current member of LCNMUK (Long Covid, Nurses and Midwives UK). Kerry and I discuss the ...

12 Feb 202333min

Guest Heidi Baseler neuroscientist talks about the brain, micro-clots, research and Long Covid

Guest Heidi Baseler neuroscientist talks about the brain, micro-clots, research and Long Covid

Send a text In this episode I talk with Heidi Baseler neuroscientist at the university of York in the Hull York medical school. We talk about the brain, micro clots research and Long Covid. How these...

5 Feb 202338min

Special episode: Ahead of tonights Panorama programme: Forgotten Heroes of the covid frontline, I talk with Rachel who features in the show

Special episode: Ahead of tonights Panorama programme: Forgotten Heroes of the covid frontline, I talk with Rachel who features in the show

Send a text This is an extra podcast ahead of the Panorama podcast this evening 'Forgotten Heroes of the Covid Front Line. I am lucky to have a special guest Rachel, founder along with her friends an...

30 Jan 202338min

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