Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

Shining a light on invisible illness.

Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive into the science of energy-limiting, chronic illness, whilst providing patients, caregivers and medical professionals with practical tools to diagnose, understand and manage their conditions.

From pacing to supplements, repurposed drugs to biomarkers, therapies to advocacy groups, we share the work that is being done for and by the community, helping patients navigate their symptoms, emotions and lives.

Join us every two weeks.

To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at:

Make Visible

@visible.health

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Episoder(41)

#40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS

#40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS

REVIEW: with Nancy Klimas, Peter Rowe, Lucinda Bateman, Todd Davenport & Theoharis Theoharides For decades, people living with ME/CFS, Long Covid, fibromyalgia, EDS and other complex chronic illnesses...

7 Aug 1h 4min

#39 ME/CFS & EDS bedbound for 8 years - Learning to Live Again with Lizzie and Amy Mooney

#39 ME/CFS & EDS bedbound for 8 years - Learning to Live Again with Lizzie and Amy Mooney

STORIES: ME/CFS and EDS left Lizzie bedbound for eight years - a mother's fight for answers and a daughter's fight to reclaim independence. Lizzie Mooney became chronically sick with ME/CFS and Ehlers...

24 Jul 52min

#38 Pacing is Power - POTS, PEM, EDS & MCAS strategies with Dr Clayton Powers

#38 Pacing is Power - POTS, PEM, EDS & MCAS strategies with Dr Clayton Powers

STRATEGIES: Physical therapy tools to reduce crashes and improve quality of life for POTS, Post-Exertional Malaise (PEM), EDS, MCAS, and infection-associated chronic conditions such as ME/CFS and Long...

10 Jul 59min

#37 ME/CFS breakthroughs: are treatments getting closer? With Action For ME, NIH, CODA, Bateman Horne Center &

#37 ME/CFS breakthroughs: are treatments getting closer? With Action For ME, NIH, CODA, Bateman Horne Center &

SCIENCE: Are ME/CFS research breakthroughs finally helping us understand the disease and move closer to treatments? ME/CFS has been underfunded and under-researched for decades.  Despite the scale and...

26 Jun 59min

#36 My daughter’s Long Covid changed how I practice medicine with Dr Binita Kane

#36 My daughter’s Long Covid changed how I practice medicine with Dr Binita Kane

STORIES: What do you do when your medical training has no answers for your own child? This is the question that Dr Binita Kane found herself facing in the aftermath of the Covid-19 pandemic. As a Cons...

13 Jun 58min

#35 Vagus nerve stimulation for chronic illness and better health with Dr Elisabetta Burchi

#35 Vagus nerve stimulation for chronic illness and better health with Dr Elisabetta Burchi

SCIENCE: What if a small, non-invasive device could help regulate your nervous system, reduce inflammation, improve cognitive function, and support recovery from chronic illness? Dr Elisabetta Burchi,...

29 Mai 1h 1min

#34 Fibromyalgia and chronic pain management with Ryan Bourdo, Physical Therapist

#34 Fibromyalgia and chronic pain management with Ryan Bourdo, Physical Therapist

STRATEGIES: Physical rehabilitation for chronic pain conditions. If you live with fibromyalgia, ME/CFS, EDS or chronic pain, you've likely heard that exercise may help. You've also probably learned, t...

15 Mai 55min

#33 Hypermobile Ehlers-Danlos Syndrome (hEDS) undiagnosed for 23 years with Dr Lucy Foulkes

#33 Hypermobile Ehlers-Danlos Syndrome (hEDS) undiagnosed for 23 years with Dr Lucy Foulkes

STORIES: Undiagnosed Hypermobile Ehlers-Danlos Syndrome (hEDS) | Chronic Pain, Diagnosis & Living with Complex Chronic Illness For 23 years, Dr Lucy Foulkes has lived with chronic pain, migraines, end...

1 Mai 1h 13min

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