Narcolepsy 360

Narcolepsy 360

Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our podcasts shed light on the less discussed issues around narcolepsy. Join Claire Crisp, our Executive Director, as she chats every week with people within our community.

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Episoder(58)

Narcolepsy 360: Betsy Ashcraft

Narcolepsy 360: Betsy Ashcraft

This is this second of a two-episode series in our deep dive into idiopathic hypersomnia and potential relation to type 2 narcolepsy. This week we are speaking Betsy Ashcraft. Betsy Ashcraft is a reti...

25 Apr 201931min

Narcolepsy 360: Dr. David Rye

Narcolepsy 360: Dr. David Rye

This is this first of a two-episode series in our deep dive into Idiopathic hypersomnia and potential relation to type 2 narcolepsy. This week we are speaking Dr. David Rye. Dr. David Rye is Professor...

11 Apr 201940min

Narcolepsy 360: Anna Leigh Marr

Narcolepsy 360: Anna Leigh Marr

Anna Leigh Marr is an actor, writer, voice-over artist and a person with Narcolepsy. In this episode, Anna shares her diagnosis journey whereupon it took 4 years to get properly diagnosed and all they...

30 Mar 201943min

Narcolepsy 360: Sara Kowalczyk

Narcolepsy 360: Sara Kowalczyk

Sara Kowalczyk is a mother and women's health patient advocate, clinical researcher, regulatory writer and person with Narcolepsy. In this episode, Sara shares her diagnosis story but also her decisio...

14 Mar 201941min

Narcolepsy 360: Andre Royal

Narcolepsy 360: Andre Royal

Andre Royal is a father, chef, entrepreneur, and person with Narcolepsy. In this episode, Andre shares his complicated journey to get properly diagnosed since he was living with multiple complicated m...

28 Feb 201931min

Narcolepsy 360: Tara Stuart

Narcolepsy 360: Tara Stuart

Tara Stuart is a mother, teacher, daughter of a person with narcolepsy and currently training for the Boston Marathon. In this episode, Tara shares her memories of growing up with her father having na...

14 Feb 201925min

Narcolepsy 360: Erin Carey

Narcolepsy 360: Erin Carey

Erin Carey is a mother of five girls and two are CWN (children with narcolepsy). When Kyla started showing symptoms of narcolepsy Erin initially thought it was diabetes. When Kyla communicated she was...

31 Jan 201936min

Narcolepsy 360: Kelsey Biddle

Narcolepsy 360: Kelsey Biddle

Kelsey Biddle is a PWN (person with narcolepsy) that was diagnosed, just over a year ago, with Type 1 Narcolepsy. In this episode, Kelsey shares the unique journey of being diagnosed within six weeks ...

25 Jan 201945min

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