Narcolepsy Navigators Podcast

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.


Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.


Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."


Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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Episoder(62)

Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders

Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders

Leave a review! In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara, both living with narcolepsy type one, are joined by Dr. Jill McGarry, a clinical psychologist with 28 years of NHS ex...

16 Jan 43min

 S1E3:Advocacy Series: Advocacy in Action: A Discussion with Matt Hornsnell on Narcolepsy

S1E3:Advocacy Series: Advocacy in Action: A Discussion with Matt Hornsnell on Narcolepsy

Leave a review! In this episode of the Narcolepsy Navigators Podcast, hosts Kerly and Iris introduce their new Advocacy Series aimed at spotlighting changemakers, advocates, and everyday heroes in the...

16 Jan 34min

S4E5: Running Half Marathons With Narcolepsy: Jayson’s Story From Taiwan

S4E5: Running Half Marathons With Narcolepsy: Jayson’s Story From Taiwan

Leave a review! In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in T...

7 Jan 34min

S1E2: Advocacy Series: Lifting the Silence: Sleep Disorders Advocacy with Claire Wylds-Wright

S1E2: Advocacy Series: Lifting the Silence: Sleep Disorders Advocacy with Claire Wylds-Wright

Leave a review! In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community. The...

27 Des 202555min

S4E4: Microsleeps, Hallucinations & Homework: Wendy’s Daily Fight

S4E4: Microsleeps, Hallucinations & Homework: Wendy’s Daily Fight

Leave a review! In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy...

10 Des 202558min

S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing

S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing

Leave a review! Trigger Content Notice: This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised. Leave a review! In this powerful ...

9 Des 202548min

S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy

S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy

Leave a review! In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her ...

9 Okt 202542min

S4E1: Kleine Levin Syndrome: Parenting Through The Challenges

S4E1: Kleine Levin Syndrome: Parenting Through The Challenges

Leave a review! In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty ...

1 Okt 20251h 17min

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