Narcolepsy Navigators Podcast

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.


Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.


Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."


Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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Episoder(57)

S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing

S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing

Leave a review! Trigger Content Notice: This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised. Leave a review! In this powerful ...

9 Des 202548min

S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy

S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy

Leave a review! In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her ...

9 Okt 202542min

S4E1: Kleine Levin Syndrome: Parenting Through The Challenges

S4E1: Kleine Levin Syndrome: Parenting Through The Challenges

Leave a review! In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty ...

1 Okt 20251h 17min

S3E12 Navigating Narcolepsy with Lucas and Kathy: Insights from Canada

S3E12 Navigating Narcolepsy with Lucas and Kathy: Insights from Canada

Leave a review! In this episode of Narcolepsy Navigators, hosted by Kerry Bwoga, the founder of Naps for Life, CIC, we sit down with 11-year-old Lucas and his mother Kathy from Toronto, Canada. Lucas ...

22 Sep 202557min

S3E11 Navigating Narcolepsy in Namibia Josephine's Journey

S3E11 Navigating Narcolepsy in Namibia Josephine's Journey

Leave a review! In this episode of Narcolepsy Navigators, hosts Kerly Bwoga and Liz are joined by Josephine Niipinge from Namibia, who shares her experience of living with narcolepsy with cataplexy. D...

15 Sep 202551min

S3E10: Fred: Finding Freedom & Life on the Road with Narcolepsy

S3E10: Fred: Finding Freedom & Life on the Road with Narcolepsy

Leave a review! This week on Narcolepsy Navigators, Kerly sits down with Fred to explore what it truly means to live with narcolepsy while navigating identity, stigma, and self-acceptance. Fred opens ...

31 Aug 20251h 2min

S3E9 Soheila’s Story: Breaking the Narcolepsy Silence in France

S3E9 Soheila’s Story: Breaking the Narcolepsy Silence in France

Leave a review! In this inspiring episode of Narcolepsy Navigators, we sit down with Soheila, a 22-year-old from the north of France, to explore what it’s like growing up with narcolepsy. Diagnosed af...

16 Aug 202551min

S3E8 Gina: Narcolepsy Through a Parent’s Eyes

S3E8 Gina: Narcolepsy Through a Parent’s Eyes

Leave a review! When Gina’s six-year-old son began showing unusual sleepiness, tantrums, and sudden collapses, she never imagined it would lead to a diagnosis of narcolepsy with cataplexy. In this hea...

9 Aug 202543min

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