PSPA Podcast
The PSPA Podcast will provide discussions and information for people caring for someone living with rare brain diseases, PSP or CBD. This podcast is brought to you thanks to the kind support of the Pavers Foundation in memory of Mary Youll.

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Episoder(30)

Carers Resilience

Carers Resilience

We spoke to Zubyda Azzam, who is a Psychotherapist at Rareminds, all about carers resilience. We discussed:Common challenges that families and carers faceWhat signs to look out for when carers resilie...

2 Jun 44min

Accessing Financial Support

Accessing Financial Support

We spoke to Peggy Newton, PSPA Helpline and Support Services Manager, all about the different kinds of financial support that is available for people living with PSP & CBD and how the Helpline can sup...

30 Apr 25min

Communicating with PSP & CBD

Communicating with PSP & CBD

This podcast features a discussion between Helen Chapman, PSPA Communications Manager and Chloe Cripps, Speech and Language Therapist all about communicating whilst living with PSP & CBD. Chloe shared...

9 Apr 49min

Brain Donation

Brain Donation

To help bust the myth around brain donation and explain more about it, and the difference valuable donations can make, we spoke to Rory Turkmen-Smith, who works at the Parkinson’s UK Brain Bank at Imp...

16 Mar 36min

Driving and getting about after a diagnosis of PSP or CBD

Driving and getting about after a diagnosis of PSP or CBD

Following a diagnosis, people commonly question how their day to day life will be affected. This can include how they might get about and whether they are still able to drive.Helpline Care Navigator, ...

10 Feb 31min

PSP & CBD Eye Care

PSP & CBD Eye Care

Eye problems are common symptoms for people living with PSP & CBD. What are these symptoms and how can you manage them at home and with the support of your local care team. Dominic Burdon, Consultant ...

22 Jan 33min

The benefit of movement

The benefit of movement

In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura  highlights what you might expect from any physiotherapy appointments you are referred for. And how movement, bi...

2 Sep 202537min

Understanding support and care

Understanding support and care

In episode 2 of series 3 of the PSPA Podcast, we speak to Dr Bicky Marshall, Consultant Neurologist at Queen Elizabeth University Hospital in Glasgow. Dr Marshall helps to answer questions from the PS...

10 Jun 202534min

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