Testing Positive: Peggy's Journey
This week our guest Peggy openly shares the experience of living with the knowledge of testing positive for the Frontotemporal Degeneration (FTD) GRN mutation. Peggy always knew of a long family histo...
28 Mar 202339min
Mary
Rachael shares her mother Mary's journey with FTD - Primary Progressive Aphasia - and also reveals her own personal journey of undergoing genetic testing and the brave steps she's taking to advance re...
21 Mar 202350min
Sarah
Wanda chronicles her mother Sarah's dementia journey in the 1980s - receiving the (mis)diagnosis of Alzheimer's at the age of 52. Sarah went on to become somewhat of a poster child for early-onset Alz...
14 Mar 202341min
Welcome to Season 7
We're back for another season, and our main focus this season is GENETICS. In today's episode we dive into: - The latest news in the FTD world: Bruce Wills' diagnosis. - A recap of how Remember Me beg...
7 Mar 202340min
Lia
In our Season 6 finale, Maria bookends the season with a retelling of her mom's story -- over 2 years later. We chat all about how as time passes... our perspective, our grief, and our focus changes. ...
6 Des 202258min
ISFTD in France: All About FTD Research with Penny Dacks
This week's we share an interview we did at the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France with Penny Dacks, AFTD's Senior Director of Scientific Initiative...
29 Nov 202226min
Our Experience at the International FTD Conference in France
You finally get to hear all about our trip to the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France. This episode focuses on our experience - and our perspective a...
22 Nov 202241min
Connie
Stephanie shares her experience with her mother's journey with FTD and the role reversal that comes with caring for a parent diagnosed with FTD. Steph's incredible strength and vulnerability in sharin...
15 Nov 202245min
