SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

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Episoder(445)

‘Think 3 at 3 Months’ Drive Seeks to Raise Awareness of Infant Movement Milestones & PCA Services

‘Think 3 at 3 Months’ Drive Seeks to Raise Awareness of Infant Movement Milestones & PCA Services

SMA News Today’s multimedia associate, Price Wooldridge, discusses the “Think 3 at 3 Months” drive, seeking to raise awareness of infant movement milestones that, if missed, could mean Spinal Muscular...

26 Okt 20207min

SMA Type 3 Adults May Have Issues Regulating Component of Cell’s ‘Skeleton,’ Study Suggests

SMA Type 3 Adults May Have Issues Regulating Component of Cell’s ‘Skeleton,’ Study Suggests

SMA News Today’s multimedia associate, Price Wooldridge, discusses SMA Type 3 adults may have issues regulating a component of cell’s cytoskeleton, according to a study. Are you interested in learnin...

23 Okt 20206min

How Memories Of a Dying Shopping Mall Made Kevin Schaefer About Adapting to Change

How Memories Of a Dying Shopping Mall Made Kevin Schaefer About Adapting to Change

Forums Director Kevin Schaefer talks about memories of a dying shopping mall in his hometown, and how it made him think about adapting to change. DeAnn Runge shares the latest column by Brianna Alber...

21 Okt 202010min

#68 - Getting A New Wheelchair

#68 - Getting A New Wheelchair

In this episode, host Kevin Schaefer talks with DeAnn Runge, vlogger and forum moderator for SMA News Today. DeAnn talks about acquiring her new service dog, Horton, and adapting to life with him. S...

20 Okt 202046min

4-aminopyridine Fails to Improve Muscle Function in SMA Type 3 Patients & New Service Dog

4-aminopyridine Fails to Improve Muscle Function in SMA Type 3 Patients & New Service Dog

SMA News Today’s multimedia associate, Price Wooldridge, discusses 4-aminopyridine’s failure to improve muscle function in SMA Type 3 patients. DeAnn Runge talks about how her new service dog Horton ...

19 Okt 20208min

SMA Type 1 Infants Treated With Zolgensma Achieving Milestones, Data Show

SMA Type 1 Infants Treated With Zolgensma Achieving Milestones, Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses SMA Type 1 infants, treated with Zolgensma, are achieving milestones. Are you interested in learning more about spinal muscular atro...

16 Okt 20207min

Spontaneous Trips, Reading, Socially Distant Celebrations, Delayed Deliveries & More

Spontaneous Trips, Reading, Socially Distant Celebrations, Delayed Deliveries & More

Forums Director Kevin Schaefer talks about a spontaneous trip he took on his 26th birthday last year, and the adventures that came from it. A variety of topics are being discussed in the forums. Amo...

14 Okt 20207min

Infants Receiving Evrysdi Continue to Improve and Achieve Motor Milestones

Infants Receiving Evrysdi Continue to Improve and Achieve Motor Milestones

SMA News Today’s multimedia associate, Price Wooldridge, discusses infants who are receiving Evrysdi continue to improve and achieve motor milestones in phase 2 and 3 trial data. In light of National...

12 Okt 20209min

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