The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

E179: Diary with Leah, a bedbound mom who developed POTS after acute illness

E179: Diary with Leah, a bedbound mom who developed POTS after acute illness

Leah's life changed after her family got sick in December 2019. They rebounded in a couple of weeks, but she did not. She was diagnosed with POTS quickly, but remains largely bedbound and has had to s...

9 Des 202330min

E178: Psychiatric Manifestations of MCAS with Dr. Janet Settle as part of the Mast Cell Matters series

E178: Psychiatric Manifestations of MCAS with Dr. Janet Settle as part of the Mast Cell Matters series

Dr. Settle is a psychiatrist who believes that mast cell activation is responsible for some symptoms of anxiety, depression, bipolar disorder type II and others. She treats MCAS as a way to stabilize ...

5 Des 202345min

E177: Gender Matters in Perceived Burdensomeness in POTS Patients with Dr. Cathy Pederson

E177: Gender Matters in Perceived Burdensomeness in POTS Patients with Dr. Cathy Pederson

Perceived burdensomeness, feeling like a burden to friends and family, is common in POTS patients. This feeling can be a predictor of suicidal thinking, particularly in men. We can change feelings of ...

28 Nov 202343min

Christmas Poem 2023 — Low Expectations

Christmas Poem 2023 — Low Expectations

Happiest holidays from everyone at Standing Up to POTS!

26 Nov 20234min

E176: POTS Diary with Hanna, a museum educator in Oregon

E176: POTS Diary with Hanna, a museum educator in Oregon

Hanna had a 15-year journey to her POTS diagnosis after fainting episodes that started in her teens. An avid athlete, she has completed a triathlon and climbed mountains in her less symptomatic days. ...

25 Nov 202334min

E175: Graded Exercise and Pacing in POTS with Dr. Catherine Lewan

E175: Graded Exercise and Pacing in POTS with Dr. Catherine Lewan

Dr. Lewan, a POTS patient with a CSF leak, helps many patients learn how to listen to their bodies and slowly progress in their physical therapy exercises. An understanding practitioner can make all t...

21 Nov 202351min

E174: Building Resilience with Dr. Katie Gorman Ezell and her student Katie

E174: Building Resilience with Dr. Katie Gorman Ezell and her student Katie

Resilience is a nuanced topic. How do you build it? Is it always a compliment if someone says you are resilient? How can we better support our chronic illness community? Dr. Gorman-Ezell discusses it ...

14 Nov 202331min

E173: POTS Diary with Kaylee, an ER nurse whose first symptom was blue legs

E173: POTS Diary with Kaylee, an ER nurse whose first symptom was blue legs

Kaylee is an ER nurse in Phoenix and shares her own story along with tips on how to get the most out of an ER visit, like telling the triage nurse everything gets you proper care faster. She has POTS,...

11 Nov 202351min

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