The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

E175: Graded Exercise and Pacing in POTS with Dr. Catherine Lewan

E175: Graded Exercise and Pacing in POTS with Dr. Catherine Lewan

Dr. Lewan, a POTS patient with a CSF leak, helps many patients learn how to listen to their bodies and slowly progress in their physical therapy exercises. An understanding practitioner can make all t...

21 Nov 202351min

E174: Building Resilience with Dr. Katie Gorman Ezell and her student Katie

E174: Building Resilience with Dr. Katie Gorman Ezell and her student Katie

Resilience is a nuanced topic. How do you build it? Is it always a compliment if someone says you are resilient? How can we better support our chronic illness community? Dr. Gorman-Ezell discusses it ...

14 Nov 202331min

E173: POTS Diary with Kaylee, an ER nurse whose first symptom was blue legs

E173: POTS Diary with Kaylee, an ER nurse whose first symptom was blue legs

Kaylee is an ER nurse in Phoenix and shares her own story along with tips on how to get the most out of an ER visit, like telling the triage nurse everything gets you proper care faster. She has POTS,...

11 Nov 202351min

E172: Pain and Hypermobility with Dr. Linda Bluestein as part of the Mast Cell Matters series

E172: Pain and Hypermobility with Dr. Linda Bluestein as part of the Mast Cell Matters series

MCAS expert Dr. Bluestein is an anesthesiologist and pain specialist focusing on hypermobility and its associated pain syndromes. Having EDS and her own pain, she discusses the use of opioids, ketamin...

7 Nov 202350min

E171: Post-Gardasil POTS Litigation with Attorney Drew Downing

E171: Post-Gardasil POTS Litigation with Attorney Drew Downing

Attorney Drew Downing is prosecuting a case against Merck on behalf of people who were vaccine-injured by the HPV vaccine Gardasil. He is knowledgeable about POTS and the legal system, providing insig...

31 Okt 202350min

E170: Dehydration, thirst, POTS and long COVID with Dr. Harriet Carroll

E170: Dehydration, thirst, POTS and long COVID with Dr. Harriet Carroll

What do POTS, ecstasy, dehydration and thirst have in common? This is a fascinating episode with Dr. Harriett Carroll, who developed POTS after the COVID vaccine. She now uses scientific expertise to ...

24 Okt 20231h

E169: Live Recordings from 10th Annual SUTP 5K/2K

E169: Live Recordings from 10th Annual SUTP 5K/2K

What a fabulous episode of the POTScast taped before our in-person 5K/2K. POTS patients and their loved ones spoke from their hearts to give an authentic glimpse of the ups and downs of living with a ...

22 Okt 202344min

E168: Headache Management in POTS with Dr. Karissa Arca

E168: Headache Management in POTS with Dr. Karissa Arca

Dr. Karissa Arca works at the intersection of autonomic and headache disorders at Mayo Clinic Arizona.  She is a wealth of information and also an advocate for patients. Join us to learn more about he...

17 Okt 202333min

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