The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

E132: Katie from Ohio, who developed POTS as a teen and a more severe form after COVID

E132: Katie from Ohio, who developed POTS as a teen and a more severe form after COVID

Katie developed POTS as a teen, and controlled it well enough to work as a respiratory therapist. A bout with COVID kicked her POTS to an entirely new level that she struggles to control. She has a un...

22 Apr 202324min

E131: Sofie from MI and her research on Emotional Intelligence

E131: Sofie from MI and her research on Emotional Intelligence

Sofie is a delightful, articulate teen who is conducting a research project on the emotional intelligence of women with POTS. As you might guess, her early results show that it is off the charts! Join...

18 Apr 202339min

E130: Health Willpower Strategies with Nutritionist Jill Brook

E130: Health Willpower Strategies with Nutritionist Jill Brook

Join our own Jill Brook to think about 10 strategies to help you build your willpower for healthy eating and other healthy habits. Willpower can be learned with practice, so don't worry if it doesn't ...

11 Apr 202337min

E129: MCAS Diagnostic Criteria “Consensus-2" with Dr. Lawrence Afrin as part of the Mast Cell Matters series

E129: MCAS Diagnostic Criteria “Consensus-2" with Dr. Lawrence Afrin as part of the Mast Cell Matters series

Dr. Afrin, a world expert in all things mast cell, talks in depth about issues with the first MCAS "consensus" statement and the need for a second MCAS consensus statement so that patients can be trea...

4 Apr 202355min

E128: Belle from Canada, saline and physiotherapy helped her walk across her graduation stage

E128: Belle from Canada, saline and physiotherapy helped her walk across her graduation stage

Belle first realized that something was wrong at 16. Living in Greece didn't help, but upon return to Canada she started to find some answers. Her goal? Walk across her high school graduate stage. Fin...

1 Apr 202327min

E127: New Clues in Plasma Proteins in POTS Patients with Dr. Artur Fedorowski

E127: New Clues in Plasma Proteins in POTS Patients with Dr. Artur Fedorowski

Dr. Fedorowski is one of the top POTS researchers in the world. This episode discusses plasma proteins that are different in POTS patients vs. controls. What might this mean? What is his new POTS symp...

28 Mar 202348min

E126: Home Infusions with Jonathan Abraham, RN BSN CCRN

E126: Home Infusions with Jonathan Abraham, RN BSN CCRN

Jonathan shares his experience as a nurse who has been doing home infusions for patients needing IVIG. He talks about the highs and lows of his job with humor. You can read the transcript for this epi...

21 Mar 202316min

E125: POTS Diary with Dr. Alisha Alls, who suffered traumatic brain injury leading to her POTS

E125: POTS Diary with Dr. Alisha Alls, who suffered traumatic brain injury leading to her POTS

Dr. Alls suffered a traumatic brain injury, had her heart stop, and developed POTS as a teenager. She speaks eloquently about her life experiences and how they have shaped her into the person she is t...

18 Mar 202332min

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