The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

E117: POTS Triggers with Dr. Cathy Pederson

E117: POTS Triggers with Dr. Cathy Pederson

What event triggered your POTS? Infection? Concussion? Pregnancy? Learn about these and more in this episode. The more scientists understand this physiology, hopefully the faster we will get effective...

14 Feb 202342min

E116: Compass Points the Way, a book about living with POTS with author Alexis Kline

E116: Compass Points the Way, a book about living with POTS with author Alexis Kline

Alexis modified her own experience with dysautonomia in her book for middle schoolers, "Compass Points the Way." She articulates in this book what most adolescents can't - what it feels like to have P...

11 Feb 202319min

E115: Mast Cell Matters: Intro to MCAS with Dr. Tania Dempsey

E115: Mast Cell Matters: Intro to MCAS with Dr. Tania Dempsey

Dr. Dempsey is helping us to launch a new series within the POTScast focusing on all things mast cells. These cells are an important part of the immune system and are found throughout the body. Learn ...

7 Feb 202342min

E114: Rachel from New York, a baker whose life was changed by COVID

E114: Rachel from New York, a baker whose life was changed by COVID

Rachel owned a fancy bakery when she developed COVID and then POTS. In her mid 20s, her life was forever changed and her illness has forced her to apply for disability. Finding joy in the little thing...

4 Feb 202323min

E113:  Academic POTS in Australia and Life as a POTS Mom with Celine Gallagher, PhD

E113: Academic POTS in Australia and Life as a POTS Mom with Celine Gallagher, PhD

While Dr. Gallagher was professionally involved in POTS research, her daughter was diagnosed with POTS. Her background couldn't prepare her for the reality of living with POTS and frustration of not h...

31 Jan 202339min

SUTP Research Survey

SUTP Research Survey

Please help us to better understand POTS! Dr. Pederson and Standing Up to POTS are launching a new online survey that takes 15-20 minutes to complete. We are seeking adults with a POTS diagnosis for t...

28 Jan 20233min

E112: Limbic System Retraining (part 3) with Dr. Kimberly Hindman

E112: Limbic System Retraining (part 3) with Dr. Kimberly Hindman

Our last episode in this study of the vagus nerve and limbic system, Dr. Hindman offers many options to try to retrain your limbic system to only allow emotional upset when you are truly in danger. Fo...

24 Jan 202358min

E111: POTS Diary with Allison from Ohio, a nurse whose POTS got worse with concussion

E111: POTS Diary with Allison from Ohio, a nurse whose POTS got worse with concussion

Meet Allison, a long-time POTSie who gives back to the community through nursing. After a concussion, she changed specialties which is a better fit for her symptoms. Using MyChart to communicate with ...

21 Jan 202334min

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