The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

E127: New Clues in Plasma Proteins in POTS Patients with Dr. Artur Fedorowski

E127: New Clues in Plasma Proteins in POTS Patients with Dr. Artur Fedorowski

Dr. Fedorowski is one of the top POTS researchers in the world. This episode discusses plasma proteins that are different in POTS patients vs. controls. What might this mean? What is his new POTS symp...

28 Mar 202348min

E126: Home Infusions with Jonathan Abraham, RN BSN CCRN

E126: Home Infusions with Jonathan Abraham, RN BSN CCRN

Jonathan shares his experience as a nurse who has been doing home infusions for patients needing IVIG. He talks about the highs and lows of his job with humor. You can read the transcript for this epi...

21 Mar 202316min

E125: POTS Diary with Dr. Alisha Alls, who suffered traumatic brain injury leading to her POTS

E125: POTS Diary with Dr. Alisha Alls, who suffered traumatic brain injury leading to her POTS

Dr. Alls suffered a traumatic brain injury, had her heart stop, and developed POTS as a teenager. She speaks eloquently about her life experiences and how they have shaped her into the person she is t...

18 Mar 202332min

E124: Pregnancy in POTS Patients with Nurse and Doctoral Candidate Kate Morgan

E124: Pregnancy in POTS Patients with Nurse and Doctoral Candidate Kate Morgan

Kate Morgan and her team just published a paper studying pregnancy in women with POTS. She found that having a baby is safe, as is taking certain medications during the pregnancy. If you have POTS and...

14 Mar 202347min

E123: Argenx Clinical Trial on Post-COVID POTS

E123: Argenx Clinical Trial on Post-COVID POTS

Registration is currently open for a clinical trial on post-COVID POTS investigating a new medication that might deplete autoantibodies and decrease POTS symptoms.This is an exciting development for t...

11 Mar 202353min

Research Study on The POTScast - please participate!

Research Study on The POTScast - please participate!

You can take this IRB approved survey at: https://docs.google.com/forms/d/e/1FAIpQLSfrkhyR4cRW9DEB8O4Pvbs9kWuQIlCtZ3gs31J6E55tMoquxg/viewform   Requirements: You must be 18, have a chronic illness lik...

9 Mar 20232min

E122: Mast Cell Matters: Diagnosis and Treatment of MCAS with Dr. Tania Dempsey

E122: Mast Cell Matters: Diagnosis and Treatment of MCAS with Dr. Tania Dempsey

Dr. Dempsey shares her experience in both diagnosing and treating people with MCAS. She always looks for POTS and orthostatic symptoms during diagnosis, as these are often comorbid disorders. Antihist...

7 Mar 202338min

E121: Diary with Shelby from KY, a mom who loves to sing and have fun

E121: Diary with Shelby from KY, a mom who loves to sing and have fun

Despite POTS, Shelby is a vivacious mom of two small children who is still on her POTS journey. IV fluids help, as does compression and staying hydrated. Listen to this wonderful interview! Please cli...

4 Mar 202333min

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