Tom's Hirschsprung's Podcast

Gemma and Carl discuss 3 generations of Hirschpsrung's with a surprise genetic twist!Carl, Gemma and Gemma's daughter Jessica all have Long Segment Hirschsprung's despite Gemma being the oldest of 6 c...

14 Aug 202550min

I'm joined by Anna, this time from America. Anna talks through her son's journey with short segment Hirschsprung's Disease and we cover a wide range of topics throughout the hour + long episode.Topics...

7 Aug 20251h 9min

Starting straight from the last episode, when Amy's daughter had her stoma fitted, we talk about how stoma care differs from country to country.With the first 6 months being incredibly difficult Amy d...

31 Jul 202556min

China is our next stop as I chat with Amy all about her daughter's diagnosis of Hirschsprung's Disease from Zambia to China via the UK.From doctors being puzzled as to what might be wrong to having to...

24 Jul 202548min

In todays episode, conducted from the hospital room, Kaitlyn chats to me about her 5 year old daughter, including topics such as diet, Hirschsprung's resources, procedures and parental health.Kaitlyn ...

17 Jul 202545min

Libby shares the story of her 2 year old daughter with Hirschsprung's from the very start.We begin with Libby being discharged from hospital with her daughter, despite Darla not passing her meconium a...

10 Jul 202546min

With no family history of Hirschsprung's, Taylor discusses her journey so far about her son Bowen, who is 7 months old.Bowen was diagnosed with Hirschsprung's despite passing his meconium at 3 weeks o...

3 Jul 202550min

In this episode we follow on from last week, where we talked about the new Hirschsprung's website, www.hirschsprungsdisease.co.uk and how this all came to be.Later on Georgina gives us an update on he...

26 Jun 202549min